Learn about myositis from those who live with it every day. We learn a lot from the experiences of others.
Ryan demonstrates some myositis leg and arm exercises and techniques he has used to help him regain strength.
We can learn so much from each other so I thought I'd share some ways I have adapted to living the #MyositisLIFE and I hope...
Important takeaways from Dr. Conrad Weihl's presentation, "Navigating the Long Term Effects of Myositis," specifically on movement/exercise and nutrition for building and preserving muscle mass...
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
Myositis Awareness Month got me thinking…and really, reflecting about a time before my initial flare-up almost three years ago, when Myositis wasn’t at the forefront of...
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain....
I don't let this disease define me. I respect it. I acknowledge it. I am actually proud at times knowing it tried to break me,...
In the process of dealing with Dermatomyositis, there are flares, painful aches, and weakness. I try to own it. Boss it. Then my body says,...
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
Over the last 3 years of dealing with necrotizing autoimmune myopathy (NAM) I have really tried to get better at asking for help. It's still...
Ryan demonstrates what he has learned to make getting up from a seated position or a wheelchair easier with myositis.