Learn about myositis from those who live with it every day. We learn a lot from the experiences of others.
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
Ryan demonstrates some myositis leg and arm exercises and techniques he has used to help him regain strength.
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
Myositis Awareness Month got me thinking…and really, reflecting about a time before my initial flare-up almost three years ago, when Myositis wasn’t at the forefront of...
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain....
I don't let this disease define me. I respect it. I acknowledge it. I am actually proud at times knowing it tried to break me,...
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
Ryan demonstrates what he has learned to make getting up from a seated position or a wheelchair easier with myositis.
These are the stairs from the condo that my family and I stayed last week for a vacation at the beach. "To be able to...
Living the #MyositisLIFE for many of us.
New symptoms are not only an indication of a myositis “flare”, sometimes new symptoms mean an emergence of overlap of other conditions.
Anyone dealing with a chronic health condition (whether as a patient or loved one/care partner) can tell you, illness makes you think about things that...