Getting a rituximab infusion and not sure what it will involve - I share my recent experience
I am so thankful that each day I face with Myositis, I am given the strength to keep going, one day at a time.
People keep telling me how resilient I am, but really, I'm just too stubborn. Too stubborn to take no for an answer. Too stubborn to...
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
My journey with Myositis and how I learn that progress isn't a straight line. Progress is where you have to keep trying and adapting.
Over the last 3 years of dealing with necrotizing autoimmune myopathy (NAM) I have really tried to get better at asking for help. It's still...
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
Thoughts while recovering from my first dermatomyositis flare
These are the stairs from the condo that my family and I stayed last week for a vacation at the beach. "To be able to...
How can I raise awareness if I'm not honest and real about all that comes with dermatomyositis?
I realized that healing includes body, soul and mind.
I don't let this disease define me. I respect it. I acknowledge it. I am actually proud at times knowing it tried to break me,...
Although my siblings tell me everything is fine, I know it's not. I'm with my mother every day... there's no way to make it look...
I have polymyositis and was been diagnosed 28 years ago. Despite ups and downs in my treatments, my motto "Hope, Courage, Strength" keeps me going...