Reflection – 20 Years Living the Myositis Life
I am so thankful that each day I face with Myositis, I am given the strength to keep going, one day at a time.
Story
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Returning from rock bottom
People keep telling me how resilient I am, but really, I'm just too stubborn. Too stubborn to take no for an answer. Too stubborn to...
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Moving forward
My journey with Myositis and how I learn that progress isn't a straight line. Progress is where you have to keep trying and adapting.
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Going out of my head
Over the last 3 years of dealing with necrotizing autoimmune myopathy (NAM) I have really tried to get better at asking for help. It's still...
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Balancing rest and recovery with myositis
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
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Waiting
Thoughts while recovering from my first dermatomyositis flare
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Long time coming…
These are the stairs from the condo that my family and I stayed last week for a vacation at the beach. "To be able to...
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A Light in the Dark: My Realities with Dermatomyositis
How can I raise awareness if I'm not honest and real about all that comes with dermatomyositis?
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The Heart of Healing
I realized that healing includes body, soul and mind.
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Finally
I don't let this disease define me. I respect it. I acknowledge it. I am actually proud at times knowing it tried to break me,...
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My Mom Has Dermatomyositis (DM)
Although my siblings tell me everything is fine, I know it's not. I'm with my mother every day... there's no way to make it look...
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My Journey with Polymyositis
I have polymyositis and was been diagnosed 28 years ago. Despite ups and downs in my treatments, my motto "Hope, Courage, Strength" keeps me going...
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The Other Pain of Living With Myositis
I’m feeling more and more isolated and alone because of this illness. I’ve held off writing publicly about it because then there’s pity and the...
