Over the last 3 years of dealing with necrotizing autoimmune myopathy (NAM) I have really tried to get better at asking for help. It's still...
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
Thoughts while recovering from my first dermatomyositis flare
These are the stairs from the condo that my family and I stayed last week for a vacation at the beach. "To be able to...
How can I raise awareness if I'm not honest and real about all that comes with dermatomyositis?
I realized that healing includes body, soul and mind.
I don't let this disease define me. I respect it. I acknowledge it. I am actually proud at times knowing it tried to break me,...
Although my siblings tell me everything is fine, I know it's not. I'm with my mother every day... there's no way to make it look...
I have polymyositis and was been diagnosed 28 years ago. Despite ups and downs in my treatments, my motto "Hope, Courage, Strength" keeps me going...
I’m feeling more and more isolated and alone because of this illness. I’ve held off writing publicly about it because then there’s pity and the...
My mystery disease actually shows up as a result of the loves of my life. A mystery that is so worth each 9 months. No...
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. But I am not alone!
I put it in the back of my drawer...thinking that would lessen the sting of seeing it and being reminded of all I’ve lost...
