Learn about myositis from those who live with it every day. We learn a lot from the experiences of others.
I feel like I am back to step one, after nine months of pushing through. Fighting every side effect. Fighting every symptom. I’m tired now.
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
Jason details how volunteering with Myositis Support and Understanding improved his attitude and depression and helped him find a passion in helping others.
Parenting with myositis is no different than parenting without. There is no time out, no free parking! It just has a few more obstacles.
Viruses become personified. I see them as mean little soldiers standing up on door knobs ready to attack me. I watch them float through the...
It seems silly going into ED for what turned out to be just a cold, but such is my life now. You never know if...
Suddenly I looked at my husband in the New Orleans hotel room at a myositis conference and said, “Maybe I could learn to drive a...
It could have all gone horribly wrong, but it didn’t. And yes, a lot of that is luck. But a lot of it is also...
Watch "Surviving the Holidays with Myositis" on #MyositisLIFE. Learn tips to get through the holidays living with our rare disease. Megan and Lauren, occupational therapists,...
Somehow, when you are sick, there is that feeling of dread that comes with being single that just makes you feel like this is it....
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
It can be scary . . . because if I don't read my body's signals right, I could get stuck.
Over the last 3 years of dealing with necrotizing autoimmune myopathy (NAM) I have really tried to get better at asking for help. It's still...