Learn about myositis from those who live with it every day. We learn a lot from the experiences of others.
It seems silly going into ED for what turned out to be just a cold, but such is my life now. You never know if...
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
Suddenly I looked at my husband in the New Orleans hotel room at a myositis conference and said, “Maybe I could learn to drive a...
It could have all gone horribly wrong, but it didn’t. And yes, a lot of that is luck. But a lot of it is also...
Watch "Surviving the Holidays with Myositis" on #MyositisLIFE. Learn tips to get through the holidays living with our rare disease. Megan and Lauren, occupational therapists,...
Somehow, when you are sick, there is that feeling of dread that comes with being single that just makes you feel like this is it....
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
It can be scary . . . because if I don't read my body's signals right, I could get stuck.
Over the last 3 years of dealing with necrotizing autoimmune myopathy (NAM) I have really tried to get better at asking for help. It's still...
I’m starting to be able to leave the house again after a couple of weeks of being really exhausted and housebound. So, things do pass....
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
This image represents my determination, stubbornness, and desperation for something normal and happy in my #MyositisLife.
Ryan demonstrates what he has learned living with myositis to help to rise from a low toilet using some practical tips and tricks.