Surviving the Holidays with Myositis
Join Megan and Lauren, occupational therapists with extensive experience working with the myositis community, for a conversation on tips and tricks to get through the...
Family
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Kept Promises – “Love Never Fails”
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
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Going out of my head
Over the last 3 years of dealing with necrotizing autoimmune myopathy (NAM) I have really tried to get better at asking for help. It's still...
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My Mom Has Dermatomyositis (DM)
Although my siblings tell me everything is fine, I know it's not. I'm with my mother every day... there's no way to make it look...
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My Vermont Myositis Family!
I live my life on my terms - finding joy in the everyday things, surrounding myself with people who love and support me and feeding...
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The Other Pain of Living With Myositis
I’m feeling more and more isolated and alone because of this illness. I’ve held off writing publicly about it because then there’s pity and the...
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Pregnancy and Dermatomyositis
My mystery disease actually shows up as a result of the loves of my life. A mystery that is so worth each 9 months. No...
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I Care About a Myositis Warrior Shirts
These myositis awareness shirts are perfect for a spouse, caregiver, family member, or friend of someone living with myositis. Available in child, adult and plus...
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In sickness and in health
In the 11 years that I have had Dermatomyositis, I’ve lost weight, gained weight, lost hair, sweated a lot, mastered the art of napping, had...
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This is our life now
Inclusion Body Myositis does not change the way you love your parent. It should not change the way you look at your parent. I had...
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Sadly my mum lost her battle as an IBM warrior
Mums journey with inclusion body myositis was a very difficult one.Following her first fall mum noticed she was falling more and more often, she saw...
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Myositis Awareness Day And My Husband’s Diagnosis
I thank God for each day that I’m able to love and support him the way that he’s always loved and supported me. We still...
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The Most Suckiest but Best things about my Mommy having Myositis
I feel peaceful because I usually behave well because I know how hard things are for my mommy. I am peaceful because I have learned...
