The pain med taper debacle
The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain....
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Parenting with the winter yucks
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Long, cold, myositis winter: The realities of living...
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Infection watch!
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Tiny Hooves, Big Therapy
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The travels and tribulations of going on holiday...
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Surviving the Holidays with Myositis
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Facing rare disease alone
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Caring for Caregivers Webinar
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Surviving the Holidays with Myositis
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Watch Intro to Ra Pharma & the Potential...
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Kept Promises – “Love Never Fails”
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Take a hike Myositis
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Going out of my head
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Global Genes Patient Advocacy Summit Highlights Video 2109
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Month Five with Dermatomyositis
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Unexpected lessons learned while facing my new reality
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You must be doing fine!!!
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Getting up from a Toilet with Myositis
Myositis Awareness
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Here I am
Living the #MyositisLIFE for many of us.
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A Light in the Dark: My Realities with Dermatomyositis
How can I raise awareness if I'm not honest and real about all that comes with dermatomyositis?
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Treat my symptoms, please…but don’t patronize me
Our symptoms and histories aren’t two second sound bites. We have complicated health histories and they matter, both for us to be heard and also...
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Pregnancy and Dermatomyositis
My mystery disease actually shows up as a result of the loves of my life. A mystery that is so worth each 9 months. No...
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What does chronic illness mental fatigue feel like?
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. But I am not alone!
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I Care About a Myositis Warrior Shirts
These myositis awareness shirts are perfect for a spouse, caregiver, family member, or friend of someone living with myositis. Available in child, adult and plus...
Check It Out$15.00 -
Myositis Awareness Month 2019
Our Myositis Awareness theme this year is #MyositisLIFE and we invite you to share what yours looks like. Submit your stories, short videos, images
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#MyositisLIFE Shirts
#MyositisLIFE Shirts Now Available to order (shown) - Myositis Awareness Month is right around the corner (May)! Order your shirts which are available in 2...
Check It Out$15-25 -
#MyositisSuperHero Shirts
Myositis Awareness Shirts on sale now through mid-April 2019!
Check It Out$15-25
