Learn about myositis from those who live with it every day. We learn a lot from the experiences of others.
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
I feel like I am back to step one, after nine months of pushing through. Fighting every side effect. Fighting every symptom. I’m tired now.
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
Having a disease like IBM has made doing almost everything I once took for granted very challenging. Here is how I have managed to keep...
Somehow, when you are sick, there is that feeling of dread that comes with being single that just makes you feel like this is it....
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
This image represents my determination, stubbornness, and desperation for something normal and happy in my #MyositisLife.
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
Over the last 3 years of dealing with necrotizing autoimmune myopathy (NAM) I have really tried to get better at asking for help. It's still...
Ryan demonstrates some myositis leg and arm exercises and techniques he has used to help him regain strength.
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
I am so thankful that each day I face with Myositis, I am given the strength to keep going, one day at a time.
I hope by telling my story it helps to normalize that it is okay to be scared, to even miss the time of being “stuck”...
People keep telling me how resilient I am, but really, I'm just too stubborn. Too stubborn to take no for an answer. Too stubborn to...