Learn about myositis from those who live with it every day. We learn a lot from the experiences of others.
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
This image represents my determination, stubbornness, and desperation for something normal and happy in my #MyositisLife.
Somehow, when you are sick, there is that feeling of dread that comes with being single that just makes you feel like this is it....
Over the last 3 years of dealing with necrotizing autoimmune myopathy (NAM) I have really tried to get better at asking for help. It's still...
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
Ryan demonstrates some myositis leg and arm exercises and techniques he has used to help him regain strength.
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
Thoughts while recovering from my first dermatomyositis flare
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
These are the stairs from the condo that my family and I stayed last week for a vacation at the beach. "To be able to...
How can I raise awareness if I'm not honest and real about all that comes with dermatomyositis?
I don't let this disease define me. I respect it. I acknowledge it. I am actually proud at times knowing it tried to break me,...