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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
Babette Reeves, MA, MSW, LCSW, shares mental health tools for caring for ourselves in ways that are protective, healing, and strengthening despite the threats around...
Jason details how volunteering with Myositis Support and Understanding improved his attitude and depression and helped him find a passion in helping others.
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
Over the last 3 years of dealing with necrotizing autoimmune myopathy (NAM) I have really tried to get better at asking for help. It's still...
It is a strange thing to find yourself with tears flowing but not quite realizing why; for me, this has been my experience with the...
My little man peppers me all day with so many questions. It made me realize just how many of my own I have.
I’m feeling more and more isolated and alone because of this illness. I’ve held off writing publicly about it because then there’s pity and the...
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. But I am not alone!
We know we cannot avoid stress; it’s simply a part of life. Whether it’s stress over our finances, relationships, job, health, or the health of...
Myositis and depression were not only affecting me, but they were also affecting my parents, my partner, my family members, and friends. The fact that...