What does chronic illness mental fatigue feel like?
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. But I am not alone!
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Staying positive with dermatomyositis
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Pain Never Sleeps
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Why, why, WHY?
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Waiting
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Leg and Arm Exercises for Myositis
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I’m…so…FRUSTRATED!!
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My Life as a Vampire
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“You’re pregnant, get used to it”
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Long time coming…
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Poly Life
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Feeling like you need your Caregiver to substantiate...
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The pain med taper debacle
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Here I am
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A Light in the Dark: My Realities with...
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Treat my symptoms, please…but don’t patronize me
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Advocating for Yourself in the Midst of Insurance...
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New symptom whack-a-mole
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The Heart of Healing
Myositis Patient Experiences
Myositis Patient ExperiencesLearn about myositis from those who live with it every day. We learn a lot from the experiences of others.
Most Viewed
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My Life as a Vampire
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
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The pain med taper debacle
The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain....
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That D**n Pay Stub
I put it in the back of my drawer...thinking that would lessen the sting of seeing it and being reminded of all I’ve lost...
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Finally
I don't let this disease define me. I respect it. I acknowledge it. I am actually proud at times knowing it tried to break me,...
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My Journey with Polymyositis
I have polymyositis and was been diagnosed 28 years ago. Despite ups and downs in my treatments, my motto "Hope, Courage, Strength" keeps me going...
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Pregnancy and Dermatomyositis
My mystery disease actually shows up as a result of the loves of my life. A mystery that is so worth each 9 months. No...
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The Other Pain of Living With Myositis
I’m feeling more and more isolated and alone because of this illness. I’ve held off writing publicly about it because then there’s pity and the...
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Leg and Arm Exercises for Myositis
Ryan demonstrates some myositis leg and arm exercises and techniques he has used to help him regain strength.
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Treat my symptoms, please…but don’t patronize me
Our symptoms and histories aren’t two second sound bites. We have complicated health histories and they matter, both for us to be heard and also...
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“You’re pregnant, get used to it”
My pregnancy journey with dermatomyositis.
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Long time coming…
These are the stairs from the condo that my family and I stayed last week for a vacation at the beach. "To be able to...
