Leg and Arm Exercises for Myositis
Ryan demonstrates some myositis leg and arm exercises and techniques he has used to help him regain strength.
Myositis Patient Experiences
Myositis Patient ExperiencesLearn about myositis from those who live with it every day. We learn a lot from the experiences of others.
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My Life as a Vampire
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
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Unexpected lessons learned while facing my new reality
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
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My Journey with Polymyositis
I have polymyositis and was been diagnosed 28 years ago. Despite ups and downs in my treatments, my motto "Hope, Courage, Strength" keeps me going...
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Kept Promises – “Love Never Fails”
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
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What does chronic illness mental fatigue feel like?
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. But I am not alone!
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Getting up from a Toilet with Myositis
Ryan demonstrates what he has learned living with myositis to help to rise from a low toilet using some practical tips and tricks.
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Getting Up from a Wheelchair with Myositis
Ryan demonstrates what he has learned to make getting up from a seated position or a wheelchair easier with myositis.
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The pain med taper debacle
The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain....
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Long, cold, myositis winter: The realities of living with myositis and germs
Viruses become personified. I see them as mean little soldiers standing up on door knobs ready to attack me. I watch them float through the...
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Pain Never Sleeps
It is a strange thing to find yourself with tears flowing but not quite realizing why; for me, this has been my experience with the...
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Pregnancy and Dermatomyositis
My mystery disease actually shows up as a result of the loves of my life. A mystery that is so worth each 9 months. No...
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The Other Pain of Living With Myositis
I’m feeling more and more isolated and alone because of this illness. I’ve held off writing publicly about it because then there’s pity and the...
