What does chronic illness mental fatigue feel like?
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. But I am not alone!
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Take a hike Myositis
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Going out of my head
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Global Genes Patient Advocacy Summit Highlights Video 2109
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Month Five with Dermatomyositis
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Unexpected lessons learned while facing my new reality
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You must be doing fine!!!
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Getting up from a Toilet with Myositis
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MSU participates as sponsor of the 2019 TMA...
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Balancing rest and recovery with myositis
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Getting Up from a Wheelchair with Myositis
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Staying positive with dermatomyositis
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Pain Never Sleeps
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Why, why, WHY?
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Waiting
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Leg and Arm Exercises for Myositis
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I’m…so…FRUSTRATED!!
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My Life as a Vampire
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“You’re pregnant, get used to it”
Myositis Patient Experiences
Myositis Patient ExperiencesLearn about myositis from those who live with it every day. We learn a lot from the experiences of others.
Most Viewed
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My Life as a Vampire
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
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The pain med taper debacle
The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain....
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Leg and Arm Exercises for Myositis
Ryan demonstrates some myositis leg and arm exercises and techniques he has used to help him regain strength.
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That D**n Pay Stub
I put it in the back of my drawer...thinking that would lessen the sting of seeing it and being reminded of all I’ve lost...
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Finally
I don't let this disease define me. I respect it. I acknowledge it. I am actually proud at times knowing it tried to break me,...
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My Journey with Polymyositis
I have polymyositis and was been diagnosed 28 years ago. Despite ups and downs in my treatments, my motto "Hope, Courage, Strength" keeps me going...
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Pregnancy and Dermatomyositis
My mystery disease actually shows up as a result of the loves of my life. A mystery that is so worth each 9 months. No...
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The Other Pain of Living With Myositis
I’m feeling more and more isolated and alone because of this illness. I’ve held off writing publicly about it because then there’s pity and the...
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Unexpected lessons learned while facing my new reality
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
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Getting Up from a Wheelchair with Myositis
Ryan demonstrates what he has learned to make getting up from a seated position or a wheelchair easier with myositis.
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“You’re pregnant, get used to it”
My pregnancy journey with dermatomyositis.
