Learn about myositis from those who live with it every day. We learn a lot from the experiences of others.
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
Ryan demonstrates some myositis leg and arm exercises and techniques he has used to help him regain strength.
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
I have polymyositis and was been diagnosed 28 years ago. Despite ups and downs in my treatments, my motto "Hope, Courage, Strength" keeps me going...
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. But I am not alone!
Ryan demonstrates what he has learned living with myositis to help to rise from a low toilet using some practical tips and tricks.
Ryan demonstrates what he has learned to make getting up from a seated position or a wheelchair easier with myositis.
The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain....
Viruses become personified. I see them as mean little soldiers standing up on door knobs ready to attack me. I watch them float through the...
It is a strange thing to find yourself with tears flowing but not quite realizing why; for me, this has been my experience with the...
My mystery disease actually shows up as a result of the loves of my life. A mystery that is so worth each 9 months. No...
I’m feeling more and more isolated and alone because of this illness. I’ve held off writing publicly about it because then there’s pity and the...