Learn about myositis from those who live with it every day. We learn a lot from the experiences of others.
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. But I am not alone!
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain....
Ryan demonstrates some myositis leg and arm exercises and techniques he has used to help him regain strength.
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
I put it in the back of my drawer...thinking that would lessen the sting of seeing it and being reminded of all I’ve lost...
I have polymyositis and was been diagnosed 28 years ago. Despite ups and downs in my treatments, my motto "Hope, Courage, Strength" keeps me going...
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
My mystery disease actually shows up as a result of the loves of my life. A mystery that is so worth each 9 months. No...
I don't let this disease define me. I respect it. I acknowledge it. I am actually proud at times knowing it tried to break me,...
I’m feeling more and more isolated and alone because of this illness. I’ve held off writing publicly about it because then there’s pity and the...
I live my life on my terms - finding joy in the everyday things, surrounding myself with people who love and support me and feeding...