Ryan demonstrates what he has learned living with myositis to help to rise from a low toilet using some practical tips and tricks.
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
Check out some photos we captured participating as a sponsor of the 2019 TMA conference. Find information about our sponsors and partners that also attended....
Ryan demonstrates what he has learned to make getting up from a seated position or a wheelchair easier with myositis.
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
We explain and highlight a personal account of how one patient fought the insurance company trying to deny a medication for myositis.
"Save Me" by Alyssa Smith is a song about myositis, released on Rare Disease Day 2019.
I feel like I am back to step one, after nine months of pushing through. Fighting every side effect. Fighting every symptom. I’m tired now.
Ryan demonstrates some myositis leg and arm exercises and techniques he has used to help him regain strength.
Having a disease like IBM has made doing almost everything I once took for granted very challenging. Here is how I have managed to keep...