Getting up from a Toilet with Myositis
Ryan demonstrates what he has learned living with myositis to help to rise from a low toilet using some practical tips and tricks.
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MSU participates as sponsor of the 2019 TMA Annual Patient Conference
Check out some photos we captured participating as a sponsor of the 2019 TMA conference. Find information about our sponsors and partners that also attended....
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Getting Up from a Wheelchair with Myositis
Ryan demonstrates what he has learned to make getting up from a seated position or a wheelchair easier with myositis.
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My Life as a Vampire
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
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Advocating for Yourself in the Midst of Insurance Prescription Denials
We explain and highlight a personal account of how one patient fought the insurance company trying to deny a medication for myositis.
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“Save Me” a song about #MyositisLIFE
"Save Me" by Alyssa Smith is a song about myositis, released on Rare Disease Day 2019.
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Back to square one?
I feel like I am back to step one, after nine months of pushing through. Fighting every side effect. Fighting every symptom. I’m tired now.
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Leg and Arm Exercises for Myositis
Ryan demonstrates some myositis leg and arm exercises and techniques he has used to help him regain strength.
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Finding my happy place with IBM
Having a disease like IBM has made doing almost everything I once took for granted very challenging. Here is how I have managed to keep...
