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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain....
We explain and highlight a personal account of how one patient fought the insurance company trying to deny a medication for myositis.
Living the #MyositisLIFE for many of us.
How can I raise awareness if I'm not honest and real about all that comes with dermatomyositis?
Our symptoms and histories aren’t two second sound bites. We have complicated health histories and they matter, both for us to be heard and also...
Although my siblings tell me everything is fine, I know it's not. I'm with my mother every day... there's no way to make it look...
I realized that healing includes body, soul and mind.
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. But I am not alone!
Please take the anonymous survey whether or not you experience pain with myositis. Survey ends June 4, 2019. This initial data is needed to determine if a larger study is warranted.
Link to Survey