"Keep Shining," a collaboration with more than 20 artists, shares Lisa Sniderman's story and struggle with illness, disability and recovery, a powerful and poignant reminder...
Our dad's time with dermatomyositis was only a small portion of his life, although a very monumental time in our life.
Dermatomyositis and cancer often go hand-in-hand and we don't really know why...
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
The vision statement for MSU says that we aim to “create a world where patients, caregivers, and providers have better knowledge, support, and understanding of...
Stand Strong Together, Myositis Warriors!
I wear a mask because I have no spleen and I am on medication for necrotizing autoimmune myopathy.
Mask up! Stay safe, stay healthy, and above all stay positive.
We may be socially distanced but we have never needed each other more. <3 Thank you MSU and Corbus for all you do for myositis...
We are going to be here for a while. So, make yourself comfortable. Dig out those blankets for the sofa. Stock up (but don’t hoard)...
Having a disease like IBM has made doing almost everything I once took for granted very challenging. Here is how I have managed to keep...
I feel like I am back to step one, after nine months of pushing through. Fighting every side effect. Fighting every symptom. I’m tired now.