Kept Promises – “Love Never Fails”
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
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Facing rare disease alone
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Caring for Caregivers Webinar
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Surviving the Holidays with Myositis
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Introduction to Ra Pharma & the Potential of...
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Kept Promises – “Love Never Fails”
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Take a hike Myositis
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Going out of my head
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Global Genes Patient Advocacy Summit Highlights Video 2109
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Month Five with Dermatomyositis
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Unexpected lessons learned while facing my new reality
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You must be doing fine!!!
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Getting up from a Toilet with Myositis
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MSU participates as sponsor of the 2019 TMA...
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Balancing rest and recovery with myositis
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Getting Up from a Wheelchair with Myositis
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Staying positive with dermatomyositis
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Pain Never Sleeps
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Why, why, WHY?
I Care
I Care -
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Take a hike Myositis
It can be scary . . . because if I don't read my body's signals right, I could get stuck.
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Going out of my head
Over the last 3 years of dealing with necrotizing autoimmune myopathy (NAM) I have really tried to get better at asking for help. It's still...
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Month Five with Dermatomyositis
I’m starting to be able to leave the house again after a couple of weeks of being really exhausted and housebound. So, things do pass....
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Unexpected lessons learned while facing my new reality
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
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You must be doing fine!!!
This image represents my determination, stubbornness, and desperation for something normal and happy in my #MyositisLife.
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Balancing rest and recovery with myositis
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
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Pain Never Sleeps
It is a strange thing to find yourself with tears flowing but not quite realizing why; for me, this has been my experience with the...
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Waiting
Thoughts while recovering from my first dermatomyositis flare
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I’m…so…FRUSTRATED!!
I won’t give up, no worries. Sometimes I just want to SCREAM in rage at this stupid disease and the never ending cycle of flare...
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“You’re pregnant, get used to it”
My pregnancy journey with dermatomyositis.
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Poly Life
Choosing positivity in this challenging disease and to be strong in mind, body, and soul.
