Keep Shining by Aoede
"Keep Shining," a collaboration with more than 20 artists, shares Lisa Sniderman's story and struggle with illness, disability and recovery, a powerful and poignant reminder...
I Care
I Care -
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Our Dad was More Than His Dermatomyositis
Our dad's time with dermatomyositis was only a small portion of his life, although a very monumental time in our life.
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The Big C
Dermatomyositis and cancer often go hand-in-hand and we don't really know why...
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Stand up, alone
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
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MSU supports our myositis community members who are Black and are other People of Color (POC)
The vision statement for MSU says that we aim to “create a world where patients, caregivers, and providers have better knowledge, support, and understanding of...
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Kaniah shares, Stand Strong Together!
Stand Strong Together, Myositis Warriors!
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Janice’s Myositis Awareness Month Mask Meme
I wear a mask because I have no spleen and I am on medication for necrotizing autoimmune myopathy.
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Living the Polymyositis life
Mask up! Stay safe, stay healthy, and above all stay positive.
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Myositis and Immune-suppressed: Self-isolated, masked, and grateful for safety and brighter days ahead.
We may be socially distanced but we have never needed each other more. <3 Thank you MSU and Corbus for all you do for myositis...
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Welcome to our world
We are going to be here for a while. So, make yourself comfortable. Dig out those blankets for the sofa. Stock up (but don’t hoard)...
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Finding my happy place with IBM
Having a disease like IBM has made doing almost everything I once took for granted very challenging. Here is how I have managed to keep...
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Back to square one?
I feel like I am back to step one, after nine months of pushing through. Fighting every side effect. Fighting every symptom. I’m tired now.
