I hope by telling my story it helps to normalize that it is okay to be scared, to even miss the time of being “stuck”...
I suffer from Inclusion Body Myositis, so I decided to write this poem last year after starting to experience some of the symptoms of this...
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
People keep telling me how resilient I am, but really, I'm just too stubborn. Too stubborn to take no for an answer. Too stubborn to...
Any interaction with the outside world is fraught with danger when other people in the world are not careful, because of the insidious and invisible...
"We take our shoes off, we go through metal detectors, we do so many things that “infringe” upon our previously understood everyday freedoms. But we...
Support and Understanding, featured in MSU's 3rd Annual A Day of Remembrance, speaks to myositis patients and caregivers both, letting us all know that we...
My journey with Myositis and how I learn that progress isn't a straight line. Progress is where you have to keep trying and adapting.
"Keep Shining," a collaboration with more than 20 artists, shares Lisa Sniderman's story and struggle with illness, disability and recovery, a powerful and poignant reminder...
Our dad's time with dermatomyositis was only a small portion of his life, although a very monumental time in our life.
It was a different experience watching "Queer Eye" this time with chronic illness. How can I zhuzh things up in my life?
Dermatomyositis and cancer often go hand-in-hand and we don't really know why...
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
The vision statement for MSU says that we aim to “create a world where patients, caregivers, and providers have better knowledge, support, and understanding of...
Stand Strong Together, Myositis Warriors!
I wear a mask because I have no spleen and I am on medication for necrotizing autoimmune myopathy.