"Keep Shining," a collaboration with more than 20 artists, shares Lisa Sniderman's story and struggle with illness, disability and recovery, a powerful and poignant reminder...
Our dad's time with dermatomyositis was only a small portion of his life, although a very monumental time in our life.
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
It was a different experience watching "Queer Eye" this time with chronic illness. How can I zhuzh things up in my life?
Dermatomyositis and cancer often go hand-in-hand and we don't really know why...
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
The vision statement for MSU says that we aim to “create a world where patients, caregivers, and providers have better knowledge, support, and understanding of...
Stand Strong Together, Myositis Warriors!
I wear a mask because I have no spleen and I am on medication for necrotizing autoimmune myopathy.
Mask up! Stay safe, stay healthy, and above all stay positive.
Sharing my Myositis Mask Meme for Myositis Awareness Month, and to protect myself and others.
Lisa shares her Myositis Mask Meme for Myositis Awareness Month, protecting immune suppressed patients and others due to COVID-19
We may be socially distanced but we have never needed each other more. <3 Thank you MSU and Corbus for all you do for myositis...
Emily walks us step-by-step through making a fabric mask using a technique and design approved by the CDC.