Living the #MyositisLIFE for many of us.
How can I raise awareness if I'm not honest and real about all that comes with dermatomyositis?
Our symptoms and histories aren’t two second sound bites. We have complicated health histories and they matter, both for us to be heard and also...
New symptoms are not only an indication of a myositis “flare”, sometimes new symptoms mean an emergence of overlap of other conditions.
I live my life on my terms - finding joy in the everyday things, surrounding myself with people who love and support me and feeding...
I have polymyositis and was been diagnosed 28 years ago. Despite ups and downs in my treatments, my motto "Hope, Courage, Strength" keeps me going...
I’m feeling more and more isolated and alone because of this illness. I’ve held off writing publicly about it because then there’s pity and the...
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. But I am not alone!
I put it in the back of my drawer...thinking that would lessen the sting of seeing it and being reminded of all I’ve lost...
These myositis awareness shirts are perfect for a spouse, caregiver, family member, or friend of someone living with myositis. Available in child, adult and plus...
Our Myositis Awareness theme this year is #MyositisLIFE and we invite you to share what yours looks like. Submit your stories, short videos, images
I have Inclusion Body Myositis (IBM); a rare and degenerative muscle wasting disease. It is an autoimmune disease with my symptoms starting when I was...
This was more like “A Month in the Life” since I filmed almost every day this month for Myositis Awareness. I am extremely fortunate to...
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