Join us for "Introduction to Ra Pharma & the Potential of Zilucoplan for the Treatment of IMNM " with MSU on November 6th at 7...
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
It can be scary . . . because if I don't read my body's signals right, I could get stuck.
Over the last 3 years of dealing with necrotizing autoimmune myopathy (NAM) I have really tried to get better at asking for help. It's still...
Seth Rothberg, co-founder of Our Odyssey, and Lynn Wilson, VP of Myositis Support and Understanding (MSU), having some fun at the Global Genes Patient Advocacy...
I’m starting to be able to leave the house again after a couple of weeks of being really exhausted and housebound. So, things do pass....
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
This image represents my determination, stubbornness, and desperation for something normal and happy in my #MyositisLife.
Ryan demonstrates what he has learned living with myositis to help to rise from a low toilet using some practical tips and tricks.
Check out some photos we captured participating as a sponsor of the 2019 TMA conference. Find information about our sponsors and partners that also attended....
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
Ryan demonstrates what he has learned to make getting up from a seated position or a wheelchair easier with myositis.
How do you stay positive when fatigue is getting you down?