Vaccines, Freedom, and Loss of the Pandemic Cocoon
I hope by telling my story it helps to normalize that it is okay to be scared, to even miss the time of being “stuck”...
#MyositisLIFE - Myositis Patient and Caregiver Experience
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But Muscles I Love
I suffer from Inclusion Body Myositis, so I decided to write this poem last year after starting to experience some of the symptoms of this...
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Returning from rock bottom
People keep telling me how resilient I am, but really, I'm just too stubborn. Too stubborn to take no for an answer. Too stubborn to...
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Coronavirus Precautions: Where Freedom and Empathy collided
Any interaction with the outside world is fraught with danger when other people in the world are not careful, because of the insidious and invisible...
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‘Anti-Maskers’ Actually Infringe Upon My Freedom
"We take our shoes off, we go through metal detectors, we do so many things that “infringe” upon our previously understood everyday freedoms. But we...
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Support and Understanding
Support and Understanding, featured in MSU's 3rd Annual A Day of Remembrance, speaks to myositis patients and caregivers both, letting us all know that we...
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Moving forward
My journey with Myositis and how I learn that progress isn't a straight line. Progress is where you have to keep trying and adapting.
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Keep Shining by Aoede
"Keep Shining," a collaboration with more than 20 artists, shares Lisa Sniderman's story and struggle with illness, disability and recovery, a powerful and poignant reminder...
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Our Dad was More Than His Dermatomyositis
Our dad's time with dermatomyositis was only a small portion of his life, although a very monumental time in our life.
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Queer Eye and the chronically ill…
It was a different experience watching "Queer Eye" this time with chronic illness. How can I zhuzh things up in my life?
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The Big C
Dermatomyositis and cancer often go hand-in-hand and we don't really know why...
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Stand up, alone
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
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MSU supports our myositis community members who are Black and are other People of Color (POC)
The vision statement for MSU says that we aim to “create a world where patients, caregivers, and providers have better knowledge, support, and understanding of...
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Kaniah shares, Stand Strong Together!
Stand Strong Together, Myositis Warriors!
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Janice’s Myositis Awareness Month Mask Meme
I wear a mask because I have no spleen and I am on medication for necrotizing autoimmune myopathy.
