I’m starting to be able to leave the house again after a couple of weeks of being really exhausted and housebound. So, things do pass....
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
This image represents my determination, stubbornness, and desperation for something normal and happy in my #MyositisLife.
Ryan demonstrates what he has learned living with myositis to help to rise from a low toilet using some practical tips and tricks.
Check out some photos we captured participating as a sponsor of the 2019 TMA conference. Find information about our sponsors and partners that also attended....
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
Ryan demonstrates what he has learned to make getting up from a seated position or a wheelchair easier with myositis.
How do you stay positive when fatigue is getting you down?
It is a strange thing to find yourself with tears flowing but not quite realizing why; for me, this has been my experience with the...
My little man peppers me all day with so many questions. It made me realize just how many of my own I have.
Thoughts while recovering from my first dermatomyositis flare
Ryan demonstrates some myositis leg and arm exercises and techniques he has used to help him regain strength.
I won’t give up, no worries. Sometimes I just want to SCREAM in rage at this stupid disease and the never ending cycle of flare...