Unexpected lessons learned while facing my new reality
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
#MyositisLIFE - Patient and Caregiver Experience
-
-
You must be doing fine!!!
This image represents my determination, stubbornness, and desperation for something normal and happy in my #MyositisLife.
-
Getting up from a Toilet with Myositis
Ryan demonstrates what he has learned living with myositis to help to rise from a low toilet using some practical tips and tricks.
-
MSU participates as sponsor of the 2019 TMA Annual Patient Conference
Check out some photos we captured participating as a sponsor of the 2019 TMA conference. Find information about our sponsors and partners that also attended....
-
Balancing rest and recovery with myositis
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
-
Getting Up from a Wheelchair with Myositis
Ryan demonstrates what he has learned to make getting up from a seated position or a wheelchair easier with myositis.
-
Staying positive with dermatomyositis
How do you stay positive when fatigue is getting you down?
-
Pain Never Sleeps
It is a strange thing to find yourself with tears flowing but not quite realizing why; for me, this has been my experience with the...
-
Why, why, WHY?
My little man peppers me all day with so many questions. It made me realize just how many of my own I have.
-
Waiting
Thoughts while recovering from my first dermatomyositis flare
-
Leg and Arm Exercises for Myositis
Ryan demonstrates some myositis leg and arm exercises and techniques he has used to help him regain strength.
-
I’m…so…FRUSTRATED!!
I won’t give up, no worries. Sometimes I just want to SCREAM in rage at this stupid disease and the never ending cycle of flare...
-
My Life as a Vampire
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
