active 2 weeks, 5 days ago Lizzy Finn

@lizzysawrus

Member since July 23, 2019

Total Reads: 1,620
Total Posts: 4
  • It is now October  – four months since I was diagnosed with Dermatomyositis. I’m going into my fifth month off work. October 1st was originally the day I was planning to go back to work.

    Four months have flow […]

    • hi Lizzy that float therapy sounds AWESOME. I have to admit, i have taken a slightly less forgiving path ..lol; i do push my body but that only started once my treatment kicked in (I was diagnosed May 21…and I didnt feel strong again until August 4th) I for sure rest, but within the time frame that I would have rested without this disease. I suppose that sounds like i am in denial of this diagnosis – and maybe i am …lol…but for now, I am eager to see how much i can feel “normal” and do the things when and how I want to; not when and how this disease wants to; I wont lie: it is hard, and i feel the “lessening” of my abilities but i keep pushing. If this disease can come upon me out of nowhere, perhaps it can go away just as easily 🙂

  • Wow, well done! Your story is similar to mine – diagnosed in June and had incredible pain and weakness. I’m so impressed that you are managing to move more for your own health and happiness. I still can’t manage more than a 15 minute walk but every day I hope that with rest, and good food, and sleep, and meds, I am moving back towards being well…[Read more]

  • Forgive me reader, for I have slipped. I have not blogged in a month. I started this leave of absence with so many plans – I would swim every day; I would blog every week; I would get up at 7 am and take my meds […]

    • @lizzysawrus – What a great, and relatable, article about your experiences. Finding that balance is tough. Knowing when to push and when to rest. When to worry and when to relax. Having such a great boyfriend that keeps you involved in “regular” activities is awesome. Communication is so important in any relationship, but with chronic illnesses like myositis, I think it doubles in importance and something I struggle with. I look forward to more of your experiences!