@lizzysawrus
Member since July 23, 2019
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Lizzy Finn published “Story” 1 week, 6 days ago
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Lizzy Finn wrote a new post, Month Five with Dermatomyositis 1 week, 6 days ago
It is now October – four months since I was diagnosed with Dermatomyositis. I’m going into my fifth month off work. October 1st was originally the day I was planning to go back to work.
Four months have flow […]
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Anne Carlo replied 1 week, 4 days agohi Lizzy that float therapy sounds AWESOME. I have to admit, i have taken a slightly less forgiving path ..lol; i do push my body but that only started once my treatment kicked in (I was diagnosed May 21…and I didnt feel strong again until August 4th) I for sure rest, but within the time frame that I would have rested without this disease. I suppose that sounds like i am in denial of this diagnosis – and maybe i am …lol…but for now, I am eager to see how much i can feel “normal” and do the things when and how I want to; not when and how this disease wants to; I wont lie: it is hard, and i feel the “lessening” of my abilities but i keep pushing. If this disease can come upon me out of nowhere, perhaps it can go away just as easily 🙂
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Lizzy Finn commented on the post, You must be doing fine!!! 3 weeks, 1 day ago
Wow, well done! Your story is similar to mine – diagnosed in June and had incredible pain and weakness. I’m so impressed that you are managing to move more for your own health and happiness. I still can’t manage more than a 15 minute walk but every day I hope that with rest, and good food, and sleep, and meds, I am moving back towards being well…[Read more]
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Lizzy Finn published “Story” 4 weeks ago
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Lizzy Finn wrote a new post, Balancing rest and recovery with myositis 1 month ago
Forgive me reader, for I have slipped. I have not blogged in a month. I started this leave of absence with so many plans – I would swim every day; I would blog every week; I would get up at 7 am and take my meds […]
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Jerry Williams replied 3 weeks, 3 days ago@lizzysawrus – What a great, and relatable, article about your experiences. Finding that balance is tough. Knowing when to push and when to rest. When to worry and when to relax. Having such a great boyfriend that keeps you involved in “regular” activities is awesome. Communication is so important in any relationship, but with chronic illnesses like myositis, I think it doubles in importance and something I struggle with. I look forward to more of your experiences!
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