Getting Up from a Wheelchair with Myositis
Ryan demonstrates what he has learned to make getting up from a seated position or a wheelchair easier with myositis.
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MSU participates as sponsor of the 2019 TMA...
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Getting Up from a Wheelchair with Myositis
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Staying positive with dermatomyositis
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Pain Never Sleeps
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Why, why, WHY?
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Waiting
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Leg and Arm Exercises for Myositis
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I’m…so…FRUSTRATED!!
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My Life as a Vampire
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“You’re pregnant, get used to it”
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Long time coming…
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Poly Life
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Feeling like you need your Caregiver to substantiate...
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The pain med taper debacle
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Here I am
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A Light in the Dark: My Realities with...
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Treat my symptoms, please…but don’t patronize me
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Advocating for Yourself in the Midst of Insurance...
Empowering
Empowering -
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Staying positive with dermatomyositis
How do you stay positive when fatigue is getting you down?
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Why, why, WHY?
My little man peppers me all day with so many questions. It made me realize just how many of my own I have.
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Leg and Arm Exercises for Myositis
Ryan demonstrates some myositis leg and arm exercises and techniques he has used to help him regain strength.
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My Life as a Vampire
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
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Long time coming…
These are the stairs from the condo that my family and I stayed last week for a vacation at the beach. "To be able to...
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The pain med taper debacle
The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain....
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Here I am
Living the #MyositisLIFE for many of us.
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A Light in the Dark: My Realities with Dermatomyositis
How can I raise awareness if I'm not honest and real about all that comes with dermatomyositis?
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Treat my symptoms, please…but don’t patronize me
Our symptoms and histories aren’t two second sound bites. We have complicated health histories and they matter, both for us to be heard and also...
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Advocating for Yourself in the Midst of Insurance Prescription Denials
We explain and highlight a personal account of how one patient fought the insurance company trying to deny a medication for myositis.
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New symptom whack-a-mole
New symptoms are not only an indication of a myositis “flare”, sometimes new symptoms mean an emergence of overlap of other conditions.
