Watch "Surviving the Holidays with Myositis" on #MyositisLIFE. Learn tips to get through the holidays living with our rare disease. Megan and Lauren, occupational therapists,...
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
Somehow, when you are sick, there is that feeling of dread that comes with being single that just makes you feel like this is it....
In celebration of National Caregivers Month, TMA and MSU invite myositis caregivers to join us for a conversation about the challenges of caring for someone...
Watch Ra Pharma and Zilucoplan for Potential Treatment of immune-mediated necrotizing myopathy (IMNM) and learn more about the phase 2 clinical trial.
It can be scary . . . because if I don't read my body's signals right, I could get stuck.
Seth Rothberg, co-founder of Our Odyssey, and Lynn Wilson, VP of Myositis Support and Understanding (MSU), having some fun at the Global Genes Patient Advocacy...
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
This image represents my determination, stubbornness, and desperation for something normal and happy in my #MyositisLife.
Ryan demonstrates what he has learned living with myositis to help to rise from a low toilet using some practical tips and tricks.
Check out some photos we captured participating as a sponsor of the 2019 TMA conference. Find information about our sponsors and partners that also attended....
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
Ryan demonstrates what he has learned to make getting up from a seated position or a wheelchair easier with myositis.