Facing rare disease alone
Somehow, when you are sick, there is that feeling of dread that comes with being single that just makes you feel like this is it....
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Parenting with the winter yucks
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Long, cold, myositis winter: The realities of living...
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Infection watch!
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Tiny Hooves, Big Therapy
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The travels and tribulations of going on holiday...
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Surviving the Holidays with Myositis
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Facing rare disease alone
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Caring for Caregivers Webinar
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Surviving the Holidays with Myositis
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Watch Intro to Ra Pharma & the Potential...
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Kept Promises – “Love Never Fails”
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Take a hike Myositis
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Going out of my head
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Global Genes Patient Advocacy Summit Highlights Video 2109
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Month Five with Dermatomyositis
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Unexpected lessons learned while facing my new reality
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You must be doing fine!!!
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Getting up from a Toilet with Myositis
Empowering
Empowering -
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Caring for Caregivers Webinar
In celebration of National Caregivers Month, TMA and MSU invite myositis caregivers to join us for a conversation about the challenges of caring for someone...
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Watch Intro to Ra Pharma & the Potential of Zilucoplan for the Treatment of IMNM
Watch Ra Pharma and Zilucoplan for Potential Treatment of immune-mediated necrotizing myopathy (IMNM) and learn more about the phase 2 clinical trial.
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Take a hike Myositis
It can be scary . . . because if I don't read my body's signals right, I could get stuck.
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Global Genes Patient Advocacy Summit Highlights Video 2109
Seth Rothberg, co-founder of Our Odyssey, and Lynn Wilson, VP of Myositis Support and Understanding (MSU), having some fun at the Global Genes Patient Advocacy...
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Unexpected lessons learned while facing my new reality
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
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You must be doing fine!!!
This image represents my determination, stubbornness, and desperation for something normal and happy in my #MyositisLife.
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Getting up from a Toilet with Myositis
Ryan demonstrates what he has learned living with myositis to help to rise from a low toilet using some practical tips and tricks.
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MSU participates as sponsor of the 2019 TMA Annual Patient Conference
Check out some photos we captured participating as a sponsor of the 2019 TMA conference. Find information about our sponsors and partners that also attended....
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Balancing rest and recovery with myositis
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
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Getting Up from a Wheelchair with Myositis
Ryan demonstrates what he has learned to make getting up from a seated position or a wheelchair easier with myositis.
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Staying positive with dermatomyositis
How do you stay positive when fatigue is getting you down?
