But Muscles I Love
I suffer from Inclusion Body Myositis, so I decided to write this poem last year after starting to experience some of the symptoms of this...
Empowering
Empowering
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The Myositis Empower Walk Newsletter – Edition 1
Introducing the Myositis Empower Walk Newsletter (MEWN)! Meet Angela, Holly, and Ashley!
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Support and Understanding
Support and Understanding, featured in MSU's 3rd Annual A Day of Remembrance, speaks to myositis patients and caregivers both, letting us all know that we...
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Moving forward
My journey with Myositis and how I learn that progress isn't a straight line. Progress is where you have to keep trying and adapting.
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Keep Shining by Aoede
"Keep Shining," a collaboration with more than 20 artists, shares Lisa Sniderman's story and struggle with illness, disability and recovery, a powerful and poignant reminder...
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Our Dad was More Than His Dermatomyositis
Our dad's time with dermatomyositis was only a small portion of his life, although a very monumental time in our life.
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Queer Eye and the chronically ill…
It was a different experience watching "Queer Eye" this time with chronic illness. How can I zhuzh things up in my life?
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Exercise in Place: Part 2
Part 2 includes information to help guide local physical and occupational therapy teams and various exercise demonstrations for myositis patients and how to modify them.
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MSU supports our myositis community members who are Black and are other People of Color (POC)
The vision statement for MSU says that we aim to “create a world where patients, caregivers, and providers have better knowledge, support, and understanding of...
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#ItsMyTurn: Becoming a Plasma Donor Hero
We need plasma donors or we face a shortage of life-saving immunoglobulin therapy used to treat myositis and many other diseases. Join the #ItsMyTurn campaign.
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Exercise in Place
Myositis and Exercise with occupational therapists Megan McGowan and Lauren Burgess, and physical therapists Fin Mears and Ruben Pagkatipunan.
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5 Mental Health Touchpoints for Living Well
Babette Reeves, MA, MSW, LCSW, shares mental health tools for caring for ourselves in ways that are protective, healing, and strengthening despite the threats around...
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COVID-19 and Myositis, Live Q&A Webinar
COVID-19 and Myositis with Dr. Lisa Christopher-Stine and Dr. Christopher Mecoli, both with Johns Hopkins Myositis Center, addresses patient and caregiver submitted questions.
