Learn from and with other myositis caregivers, spouses, and care partners and share yours with us. We learn so much from the experiences of others.
Here are our lessons learned for traveling with an IBM’r who requires a patient lift for transfers: Finding suitable hotel rooms was the biggest challenge....
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
For Mavis, Love Stella. A Caregiver poem for a dear friend. I am the care giver you see me every where, but what you don’t...
Inclusion Body Myositis does not change the way you love your parent. It should not change the way you look at your parent. I had...
Mums journey with inclusion body myositis was a very difficult one.Following her first fall mum noticed she was falling more and more often, she saw...
I thank God for each day that I’m able to love and support him the way that he’s always loved and supported me. We still...
I feel peaceful because I usually behave well because I know how hard things are for my mommy. I am peaceful because I have learned...