Patients share their experiences living with dermatomyositis, one of a group of rare autoimmune diseases, the idiopathic inflammatory myopathies.
It seems silly going into ED for what turned out to be just a cold, but such is my life now. You never know if...
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
It could have all gone horribly wrong, but it didn’t. And yes, a lot of that is luck. But a lot of it is also...
Somehow, when you are sick, there is that feeling of dread that comes with being single that just makes you feel like this is it....
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
It can be scary . . . because if I don't read my body's signals right, I could get stuck.
I’m starting to be able to leave the house again after a couple of weeks of being really exhausted and housebound. So, things do pass....
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
This image represents my determination, stubbornness, and desperation for something normal and happy in my #MyositisLife.
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
How do you stay positive when fatigue is getting you down?
It is a strange thing to find yourself with tears flowing but not quite realizing why; for me, this has been my experience with the...
Thoughts while recovering from my first dermatomyositis flare