Patients share their experiences living with dermatomyositis, one of a group of rare autoimmune diseases, the idiopathic inflammatory myopathies.
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
In the process of dealing with Dermatomyositis, there are flares, painful aches, and weakness. I try to own it. Boss it. Then my body says,...
People keep telling me how resilient I am, but really, I'm just too stubborn. Too stubborn to take no for an answer. Too stubborn to...
My journey with Myositis and how I learn that progress isn't a straight line. Progress is where you have to keep trying and adapting.
"Keep Shining," a collaboration with more than 20 artists, shares Lisa Sniderman's story and struggle with illness, disability and recovery, a powerful and poignant reminder...
Our dad's time with dermatomyositis was only a small portion of his life, although a very monumental time in our life.
Dermatomyositis and cancer often go hand-in-hand and we don't really know why...
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
Stand Strong Together, Myositis Warriors!
Lisa shares her Myositis Mask Meme for Myositis Awareness Month, protecting immune suppressed patients and others due to COVID-19
We may be socially distanced but we have never needed each other more. <3 Thank you MSU and Corbus for all you do for myositis...
We are going to be here for a while. So, make yourself comfortable. Dig out those blankets for the sofa. Stock up (but don’t hoard)...