The Healing Power of Creativity
How creative outlets such as art and writing have helped me cope with difficult things such as Dermatomyositis.
Dermatomyositis
Patients share their experiences living with dermatomyositis, one of a group of rare autoimmune diseases, the idiopathic inflammatory myopathies.
-
-
Myositis Awareness Month Honesty
I admit that I’m very very tired. It’s been a long 6 years of steadily worsening symptoms, especially pain and weakness, and lung involvement again...
-
Navigating ambiguity, building resilience, and celebrating wins: what I have learned after three years with a rare disease
We are all doing our best to navigate ambiguity and build resilience, and we are trying to find joy and reasons to celebrate - some...
-
Rituximab – what to expect
Getting a rituximab infusion and not sure what it will involve - I share my recent experience
-
I Forgot to Grieve
Lisa Sniderman shares the story of her realization that we actually are grieving because of our chronic, rare illness and realized she hadn't grieved her...
-
When your body says, “NO!”
In the process of dealing with Dermatomyositis, there are flares, painful aches, and weakness. I try to own it. Boss it. Then my body says,...
-
Returning from rock bottom
People keep telling me how resilient I am, but really, I'm just too stubborn. Too stubborn to take no for an answer. Too stubborn to...
-
Moving forward
My journey with Myositis and how I learn that progress isn't a straight line. Progress is where you have to keep trying and adapting.
-
Keep Shining by Aoede
"Keep Shining," a collaboration with more than 20 artists, shares Lisa Sniderman's story and struggle with illness, disability and recovery, a powerful and poignant reminder...
-
Our Dad was More Than His Dermatomyositis
Our dad's time with dermatomyositis was only a small portion of his life, although a very monumental time in our life.
-
The Big C
Dermatomyositis and cancer often go hand-in-hand and we don't really know why...
-
Stand up, alone
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
-
Kaniah shares, Stand Strong Together!
Stand Strong Together, Myositis Warriors!
