Polymyositis Life
Choosing positivity in this challenging disease and to be strong in mind, body, and soul.
Polymyositis
-
-
My Journey with Polymyositis
I have polymyositis and was been diagnosed 28 years ago. Despite ups and downs in my treatments, my motto "Hope, Courage, Strength" keeps me going...
-
Adventures with Polymyositis: My experiences and recommendations
At 63, I thought the weakness was age-related until a vacation in Europe, where it became increasingly difficult to rise from a seat and climb...
-
Fay’s Journey with Polymyositis
I had a trach, feeding tube, and had lost 26 pounds of muscle mass with the onset of Polymyositis. I came home with the feeding...
-
My new life with Polymyositis
People look at me and say, “Oh there is nothing wrong with you. You are exaggerating or you want attention.” Well, we may look great...
-
Polymyositis: How to Soar Above the Disease
Before polymyositis (PM) I was like a caterpillar just consuming life. I prided myself on being busy and being the queen of multitasking. I would...
-
Prednisone: Friend and Foe
In order to understand how Prednisone changes a person’s life, you need to know what physical activities their life consisted of before. What was modified...
-
Myositis Awareness and Mental Health Awareness Months Meet
Myositis and depression were not only affecting me, but they were also affecting my parents, my partner, my family members, and friends. The fact that...
-
Road to Diagnosis: Acceptance and Mission
It took me five years to get a diagnosis, polymyositis, and different parts of my proximal muscles were getting weak every year. It started with...
-
Myositis Awareness Day And My Husband’s Diagnosis
I thank God for each day that I’m able to love and support him the way that he’s always loved and supported me. We still...
