Paul shares five important elements at the Heart of Caregiving from his own personal story as a Parkinson’s caregiver.
Dr. Rohit Aggarwal answers patient-submitted questions about COVID-19 and myositis including proper precautions to stay safe, information about immune-suppressing medications and IG, and much more.
Myositis and Exercise with occupational therapists Megan McGowan and Lauren Burgess, and physical therapists Fin Mears and Ruben Pagkatipunan.
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
Babette Reeves, MA, MSW, LCSW, shares mental health tools for caring for ourselves in ways that are protective, healing, and strengthening despite the threats around...
Watch the recording of the virtual briefing MSU co-sponsored with the U.S. Centers for Disease Control and Prevention (CDC), Johns Hopkins Medicine, U.C. Davis Health,...
COVID-19 and Myositis with Dr. Lisa Christopher-Stine and Dr. Christopher Mecoli, both with Johns Hopkins Myositis Center, addresses patient and caregiver submitted questions.
Watch Orthotics and Myositis and learn about different types of orthotics and braces that may be helpful for people with myositis. This is a #MyositisLIFE...
Emily walks us step-by-step through making a fabric mask using a technique and design approved by the CDC.
Dr. Mary Katherine (MK) Farmer, MD, Rheumatologist and Senior Medical Director at Kezar Life Sciences, joined us live online on Rare Disease Day 2020 and...
Watch "Surviving the Holidays with Myositis" on #MyositisLIFE. Learn tips to get through the holidays living with our rare disease. Megan and Lauren, occupational therapists,...
In celebration of National Caregivers Month, TMA and MSU invite myositis caregivers to join us for a conversation about the challenges of caring for someone...
Watch Ra Pharma and Zilucoplan for Potential Treatment of immune-mediated necrotizing myopathy (IMNM) and learn more about the phase 2 clinical trial.
Ryan demonstrates what he has learned living with myositis to help to rise from a low toilet using some practical tips and tricks.