Emily Filmore

Emily Filmore wrote a new post 3 years, 4 months ago

I don’t work due to my cluster of diseases, at the forefront being dermatomyositis, my body riddled with weakness, rashes, fatigue, and pain. I’ve been immune suppressed for much of the past 26 years.

I kno […]

Jerry Williams replied 3 years, 4 months ago

@efilmore Thank you for sharing the emotions you are experiencing. I haven’t yet been vaccinated so I am still stuck in my “cocoon” and while I am happy that things are opening up, but one of my fears is that people might forget that this is sort of how we live all the time. I hope that the many valuable lessons we have learned through this will be addressed, and I hope telehealth is here to stay. As always, your writing has helped me to start thinking about this for when the time is right for me to burst out of the “cocoon.” Thank you!
- Emily Filmore replied 3 years, 4 months ago
  
  Thank you, @jerrywilliams, I worry too, that “heathy”people will not “remember” what this was like. I really had hoped that the world would come out of this with more empathy for people with chronic illness. I can’t wait until you are vaccinated and safer too. 💖

Emily Filmore wrote a new post 3 years, 7 months ago

Is the United States the land of the “free” or the land of the “me”? Are personal freedom and empathy bound to be in conflict or can they co-exist? I propose that they can, in fact, fuel each other. […]

Emily Filmore wrote a new post 3 years, 7 months ago

We take our shoes off, we go through metal detectors, we do so many things that “infringe” upon our previously understood everyday freedoms. But we agreed to them, bought into them and accepted them as nec […]

Emily Filmore wrote a new post 3 years, 9 months ago

Support and UnderstandingSupport and Understanding by Emily Filmore If ever I feel weak, your love makes me strong If ever I feel scared, your support makes me fierce If […]

Emily Filmore wrote a new post 4 years, 2 months ago

Emily Filmore wrote a new post 4 years, 3 months ago

While self-quarantined for the past four weeks to protect herself from the Coronavirus, Emily has tried to find ways to both occupy […]

Jerry Williams replied 4 years, 3 months ago

@efilmore Thank you for putting this video together. While I don’t sew, if I did, it looks like this would be an easier way. I imagine this will help many people. Keep up the great work. I am so proud of you!

Emily Filmore wrote a new post 4 years, 6 months ago

What happens when you are a parent with myositis, and your child gets a cold or flu? You don’t stop being a parent. You don’t stop wanting to comfort and give love at 2am when they can’t sleep, just because you d […]

Emily Filmore wrote a new post 4 years, 7 months ago

Long, cold, myositis winter: The realities of living with myositis and germsThe typical drugs used to control myositis lower the immune system to make it stop attacking the patient’s own body: steroids, Methotrexate, Cellcept, I […]

Emily Filmore wrote a new post 5 years ago

Hi, my name is Emily. I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.” I swear, I’m not going to suck your blood. I don’t have sharp pointy teeth. However […]