The pain med taper debacle

The pain med taper debacle

The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain. Included is a survey for those with myositis regarding pain. 2 min

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If you really want an example of what being a #MyositisWarrior is all about look no further than the pain medicine debacle. The CDC has recently released information indicating that the rash of pain medicine tapers for chronic pain patients may have been a “slight” over-correction.

Doctors, fearing losing their Medical licenses, started drastic, rapid reductions of pain meds and in some cases didn’t offer alternatives to patients who needed, nay, deserved pain relief. The collateral damage of such irresponsible tapers is that chronic pain sufferers have been left with no choice but to turn to getting their opioids from the street, where they may be laced with other, more dangerous substances leading to accidental death. In other cases, people have turned to death by suicide as they see no other escape.

In 2016, seeking to curb opioid misuse, the Centers for Disease Control and Prevention introduced guidelines outlining a maximum safe dosage and strongly urging doctors to avoid prescribing for chronic pain unless death is imminent. The guidelines were supposed to be voluntary and apply only to chronic pain patients seeing general practitioners. Instead, they have been widely seen by doctors as mandatory. – Hans Bader

This is no laughing matter. The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain.

Pilot Survey ended June 4, 2019

Myositis Pain and Opioids Survey Update
We wanted to share a little bit of news. We aren’t able to give many specifics yet, because it’s still in the conceptual stage, but thanks to our pilot survey with close to 500 responses, MSU is teaming up with several known #myositis researchers to conduct a more formal study about myositis pain and the effects of the 2016 CDC regulations on opioids. We will let you know more as it becomes available, but for now, we want to thank YOU!
If you didn’t get to take the initial survey, don’t worry. You will have the opportunity to have your voice heard on this topic soon. Be sure to register for your free MSU membership at to stay updated via email and to continue getting involved to make a difference.
We couldn’t do anything we do without your participation, support, attention, and of course, your donations and sharing our fundraising efforts! You are the reason why our nonprofit organization was founded; by patients for patients. You matter! – MSU

But don’t take our word for it:

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Myositis Support

Myositis Support and Understanding Association (MSU) is a patient-led, patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community! MSU was founded by myositis patients for myositis patients and caregivers and offers education, various support options, advocacy, clinical trial matching, financial assistance, and access to research. Visit our comprehensive myositis website at




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