active 3 months, 1 week ago
Myositis Support
@myositis
Member since March 25, 2019
Total Reads:
17,967
Total Posts:
49
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Myositis Support wrote a new post, #ItsMyTurn: Becoming a Plasma Donor Hero 6 days, 11 hours ago
With physical distancing restrictions due to the coronavirus pandemic, fewer […]
Myositis Support wrote a new post, Paul Kidwell Presents Five Stories at the Heart of Caregiving 1 week, 4 days ago
Watch the recording of “Paul Kidwell Presents Five S […]
Myositis Support wrote a new post, Managing Myositis Patient Care During the COVID-19 Public Health Crisis 2 weeks, 5 days ago
Watch “Managing Myositis P […]
Myositis Support wrote a new post, Exercise in Place 3 weeks ago
Watch “Exercise in Place” with occupational therapists Megan McGowan and Lauren Burgess, and phy […]
Myositis Support wrote a new post, 5 Mental Health Touchpoints for Living Well 3 weeks, 6 days ago
Even for the healthiest, the COVID-19 virus triggers threat responses […]
Myositis Support wrote a new post, CDC Briefing: COVID-19 and the Chronic Disease Community 1 month ago
MSU co-sponsored, together with the Chronic Care Policy Alliance, Global Healthy Living Foundation and […]
Myositis Support published “Meme” 1 month ago
Myositis Support wrote a new post, COVID-19 and Myositis, Live Q&A Webinar 1 month, 3 weeks ago
Dr. Lisa Christopher-Stine and Dr. Christopher Mecoli, both with Johns Hopkins Myositis […]
Myositis Support wrote a new post, Orthotics and Myositis 1 month, 3 weeks ago
Watch the recorded version of the Orthotics and Myositis video session to learn about different […]
Myositis Support wrote a new post, Coronavirus concerns with Myositis 3 months ago
Current and updated COVID-19 and […]
Myositis Support wrote a new post, Surviving the Holidays with Myositis 6 months, 2 weeks ago
The holidays can be a stressful time for […]
Myositis Support wrote a new post, Caring for Caregivers Webinar 7 months ago
Caring for Caregivers: A webinar from The Myositis […]
Myositis Support wrote a new post, Surviving the Holidays with Myositis 7 months ago
Register to attend "Surviving the Holidays with Myositis"
”Wednesday,
Myositis Support wrote a new post, Watch Intro to Ra Pharma & the Potential of Zilucoplan for the Treatment of IMNM 7 months, 1 week ago
Ben Matys, Sr. Clinical Trial Manager, and Ramin Farzaneh-Far, Chief Medical Officer of Ra […]
Myositis Support wrote a new post, Global Genes Patient Advocacy Summit Highlights Video 2109 7 months, 4 weeks ago
Rare Disease Patient Advocates
We thought you would like to see a fun moment from the Global Genes Patient Advocacy Summit.Seth Rothberg, co-founder of Our Odyssey and a rare disease advocate and motivational […]
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Jerry Williams replied 7 months, 4 weeks ago@lynnwilson Love your rare disease advocate dance with Seth!
Myositis Support wrote a new post, What does chronic illness mental fatigue feel like? 1 year, 1 month ago
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. I’m tired of scaring my children. I’m tired of them putting on a “brave face” for me. I’m tired of worrying my paren […]
Myositis Support wrote a new post, I Care About a Myositis Warrior Shirts 1 year, 1 month ago
This campaign is now closed. Thank you for your support!
View this post on Instagram"I Care About A Myositis Warrior" shirts are available for order, but only for 8 more days! These shirts are perfect for a spouse, caregiver, family member, or friend of something living with myositis. Available in child, adult and plus sizes. 🎗️ Order at http://www.customink.com/fundraising/myositissupport2 or visit http://bit.ly/msu2019 to see all three shirt campaigns. #myositisawareness #myositiswarrior #myositissuperhero #caregivers #carers #carepartners #myositis #inclusionbodymyositis #thestruggleisreal #dermatomyositis #polymyositis #necrotizingmyopathy #jdm #juvenilemyositis #myositisLIFE
Myositis Support wrote a new post, A Day in the Life of Someone with Myositis 1 year, 2 months ago
This was more like “A Month in the Life” since I filmed almost every day this month for Myo […]
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