active 6 months, 1 week ago
Myositis Support
@myositis
Member since March 25, 2019
Total Reads:
12,571
Total Posts:
35
-
Myositis Support wrote a new post, Global Genes Patient Advocacy Summit Highlights Video 2109 1 week, 4 days ago
Rare Disease Patient Advocates
We thought you would like to see a fun moment from the Global Genes Patient Advocacy Summit.Seth Rothberg, co-founder of Our Odyssey and a rare disease advocate and motivational […]
-
Myositis Support wrote a new post, Prednisone: Friend and Foe 6 months, 3 weeks ago
In order to understand how Prednisone changes a person’s life, you need to know what physical activities their life consisted of before. What was modified and how have things changed?
Before Polymyositis, I at […]
@lynnwilson Love your rare disease advocate dance with Seth!