active 4 months, 1 week ago
Myositis Support
@myositis
Member since March 25, 2019
Total Reads:
23,175
Total Posts:
53
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Myositis Support wrote a new post, Exercise in Place: Part 3 2 months ago
Watch “Exercise in Place Part 3: Fall Prevention and Response” with occupational therapist Megan McGowan, and physical therapists Fin Mears and Ruben Pagkatipunan Jr. […]
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Myositis Support wrote a new post, Keep Shining by Aoede 2 months, 1 week ago
“Before the closing of my live show in December 2018, performers came together as a group and sang a new song I wrote for the e […]
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Roberto Tardelli replied 2 months, 1 week ago
Wonderful and emotional!
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Myositis Support wrote a new post, Exercise in Place: Part 2 4 months, 2 weeks ago
Watch “Exercise in Place: Part 2” with occupational therapists Megan McGowan and Lauren Burgess, and physical therapists Fin Mears and Ruben Pagkatipunan Jr., with the […]
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Myositis Support wrote a new post, MSU supports our myositis community members who are Black and are other People of Color (POC) 4 months, 2 weeks ago
MSU was built on the idea that myositis patients and caregivers could form a community of family who would be there for each other while learning ways to cope with our rare disease. We have an opportunity today to […]
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Myositis Support wrote a new post, #ItsMyTurn: Becoming a Plasma Donor Hero 4 months, 3 weeks ago
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Myositis Support wrote a new post, Paul Kidwell Presents Five Stories at the Heart of Caregiving 5 months ago
Watch the recording of “Paul Kidwell Presents Five S […]
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Myositis Support wrote a new post, Managing Myositis Patient Care During the COVID-19 Public Health Crisis 5 months, 1 week ago
Watch “Managing Myositis P […]
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Myositis Support wrote a new post, Exercise in Place 5 months, 1 week ago
Watch “Exercise in Place” with occupational therapists Megan McGowan and Lauren Burgess, and phy […]
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Myositis Support wrote a new post, 5 Mental Health Touchpoints for Living Well 5 months, 2 weeks ago
Even for the healthiest, the COVID-19 virus triggers threat […]
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Myositis Support wrote a new post, CDC Briefing: COVID-19 and the Chronic Disease Community 5 months, 3 weeks ago
MSU co-sponsored, together with the Chronic Care Policy Alliance, Global Healthy Living Foundation and […]
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Myositis Support published “Meme” 5 months, 3 weeks ago
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Myositis Support published “Story” 6 months ago
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Myositis Support wrote a new post, COVID-19 and Myositis, Live Q&A Webinar 6 months, 1 week ago
Dr. Lisa Christopher-Stine and Dr. Christopher Mecoli, both with Johns Hopkins Myositis […]
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Myositis Support wrote a new post, Orthotics and Myositis 6 months, 2 weeks ago
Watch the recorded version of the Orthotics and Myositis video session to learn about different […]
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Myositis Support wrote a new post, Coronavirus concerns with Myositis 7 months, 3 weeks ago
Current and updated COVID-19 and […]
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Myositis Support wrote a new post, Surviving the Holidays with Myositis 11 months, 1 week ago
The holidays can be a stressful time for […]
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Myositis Support wrote a new post, Caring for Caregivers Webinar 11 months, 3 weeks ago
Caring for Caregivers: A webinar from The Myositis […]
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Myositis Support wrote a new post, Surviving the Holidays with Myositis 11 months, 3 weeks ago
Register to attend "Surviving the Holidays with Myositis"
”Wednesday,
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Myositis Support wrote a new post, Watch Intro to Ra Pharma & the Potential of Zilucoplan for the Treatment of IMNM 12 months ago
Ben Matys, Sr. Clinical Trial Manager, and Ramin Farzaneh-Far, Chief Medical Officer of Ra […]
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