active 1 month, 2 weeks ago
Myositis Support
@myositis
Member since March 25, 2019
Total Reads:
20,047
Total Posts:
51
-
Myositis Support wrote a new post, Exercise in Place: Part 2 2 months ago
Watch “Exercise in Place: Part 2” with occupational therapists Megan McGowan and Lauren Burgess, and physical therapists Fin Mears and Ruben Pagkatipunan Jr., with the […]
-
Myositis Support wrote a new post, MSU supports our myositis community members who are Black and are other People of Color (POC) 2 months ago
MSU was built on the idea that myositis patients and caregivers could form a community of family who would be there for each other while learning ways to cope with our rare disease. We have an opportunity today to […]
-
Myositis Support wrote a new post, #ItsMyTurn: Becoming a Plasma Donor Hero 2 months, 1 week ago
-
Myositis Support wrote a new post, Paul Kidwell Presents Five Stories at the Heart of Caregiving 2 months, 2 weeks ago
Watch the recording of “Paul Kidwell Presents Five S […]
-
Myositis Support wrote a new post, Managing Myositis Patient Care During the COVID-19 Public Health Crisis 2 months, 3 weeks ago
Watch “Managing Myositis P […]
-
Myositis Support wrote a new post, Exercise in Place 2 months, 3 weeks ago
Watch “Exercise in Place” with occupational therapists Megan McGowan and Lauren Burgess, and phy […]
-
Myositis Support wrote a new post, 5 Mental Health Touchpoints for Living Well 3 months ago
Even for the healthiest, the COVID-19 virus triggers threat […]
-
Myositis Support wrote a new post, CDC Briefing: COVID-19 and the Chronic Disease Community 3 months, 1 week ago
MSU co-sponsored, together with the Chronic Care Policy Alliance, Global Healthy Living Foundation and […]
-
Myositis Support published “Meme” 3 months, 1 week ago
-
-
Myositis Support wrote a new post, COVID-19 and Myositis, Live Q&A Webinar 3 months, 3 weeks ago
Dr. Lisa Christopher-Stine and Dr. Christopher Mecoli, both with Johns Hopkins Myositis […]
-
Myositis Support wrote a new post, Orthotics and Myositis 3 months, 4 weeks ago
Watch the recorded version of the Orthotics and Myositis video session to learn about different […]
-
-
Myositis Support wrote a new post, Coronavirus concerns with Myositis 5 months, 1 week ago
Current and updated COVID-19 and […]
-
Myositis Support wrote a new post, Surviving the Holidays with Myositis 8 months, 3 weeks ago
The holidays can be a stressful time for […]
-
Myositis Support wrote a new post, Caring for Caregivers Webinar 9 months ago
Caring for Caregivers: A webinar from The Myositis […]
-
Myositis Support wrote a new post, Surviving the Holidays with Myositis 9 months, 1 week ago
Register to attend "Surviving the Holidays with Myositis"
”Wednesday,
-
Myositis Support wrote a new post, Watch Intro to Ra Pharma & the Potential of Zilucoplan for the Treatment of IMNM 9 months, 2 weeks ago
Ben Matys, Sr. Clinical Trial Manager, and Ramin Farzaneh-Far, Chief Medical Officer of Ra […]
-
Myositis Support wrote a new post, Global Genes Patient Advocacy Summit Highlights Video 2109 10 months ago
Rare Disease Patient Advocates
We thought you would like to see a fun moment from the Global Genes Patient Advocacy Summit.Seth Rothberg, co-founder of Our Odyssey and a rare disease advocate and motivational […]
-
Jerry Williams replied 10 months ago@lynnwilson Love your rare disease advocate dance with Seth!
-
-
Myositis Support wrote a new post, What does chronic illness mental fatigue feel like? 1 year, 3 months ago
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. I’m tired of scaring my children. I’m tired of them putting on a “brave face” for me. I’m tired of worrying my paren […]
- Load More
