active 7 months, 3 weeks ago
Myositis Support
@myositis
Member since March 25, 2019
Total Reads:
13,973
Total Posts:
39
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Myositis Support wrote a new post, Surviving the Holidays with Myositis 2 weeks, 5 days ago
The holidays can be a stressful time for […]
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Myositis Support wrote a new post, Caring for Caregivers Webinar 4 weeks, 1 day ago
Caring for Caregivers: A webinar from The Myositis […]
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Myositis Support wrote a new post, Surviving the Holidays with Myositis 1 month ago
Register to attend "Surviving the Holidays with Myositis"
”Wednesday,
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Myositis Support wrote a new post, Watch Intro to Ra Pharma & the Potential of Zilucoplan for the Treatment of IMNM 1 month, 1 week ago
Ben Matys, Sr. Clinical Trial Manager, and Ramin Farzaneh-Far, Chief Medical Officer of Ra […]
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Myositis Support wrote a new post, Global Genes Patient Advocacy Summit Highlights Video 2109 1 month, 4 weeks ago
Rare Disease Patient Advocates
We thought you would like to see a fun moment from the Global Genes Patient Advocacy Summit.Seth Rothberg, co-founder of Our Odyssey and a rare disease advocate and motivational […]
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Jerry Williams replied 1 month, 3 weeks ago@lynnwilson Love your rare disease advocate dance with Seth!
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Myositis Support wrote a new post, Prednisone: Friend and Foe 8 months, 1 week ago
In order to understand how Prednisone changes a person’s life, you need to know what physical activities their life consisted of before. What was modified and how have things changed?
Before Polymyositis, I at […]
