Getting a rituximab infusion and not sure what it will involve - I share my recent experience
We can learn so much from each other so I thought I'd share some ways I have adapted to living the #MyositisLIFE and I hope...
Important takeaways from Dr. Conrad Weihl's presentation, "Navigating the Long Term Effects of Myositis," specifically on movement/exercise and nutrition for building and preserving muscle mass...
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
Myositis Empower Walk Newsletter (MEWN) Edition Two. The Landman's speak with last year's Myositis Empower Walk top team fundraising captains about how team fundraising can...
In the process of dealing with Dermatomyositis, there are flares, painful aches, and weakness. I try to own it. Boss it. Then my body says,...
Any interaction with the outside world is fraught with danger when other people in the world are not careful, because of the insidious and invisible...
It was a different experience watching "Queer Eye" this time with chronic illness. How can I zhuzh things up in my life?
Dermatomyositis and cancer often go hand-in-hand and we don't really know why...
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
Part 2 includes information to help guide local physical and occupational therapy teams and various exercise demonstrations for myositis patients and how to modify them.
Stand Strong Together, Myositis Warriors!
I wear a mask because I have no spleen and I am on medication for necrotizing autoimmune myopathy.
Myositis and Exercise with occupational therapists Megan McGowan and Lauren Burgess, and physical therapists Fin Mears and Ruben Pagkatipunan.