Rituximab – what to expect
Getting a rituximab infusion and not sure what it will involve - I share my recent experience
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My Top 10 Practical Tips for Living the Myositis Life
We can learn so much from each other so I thought I'd share some ways I have adapted to living the #MyositisLIFE and I hope...
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Preventing frailty: What Myositis Patients CAN Do
Important takeaways from Dr. Conrad Weihl's presentation, "Navigating the Long Term Effects of Myositis," specifically on movement/exercise and nutrition for building and preserving muscle mass...
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The Myositis Empower Walk Newsletter – Edition 2
Myositis Empower Walk Newsletter (MEWN) Edition Two. The Landman's speak with last year's Myositis Empower Walk top team fundraising captains about how team fundraising can...
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When your body says, “NO!”
In the process of dealing with Dermatomyositis, there are flares, painful aches, and weakness. I try to own it. Boss it. Then my body says,...
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Coronavirus Precautions: Where Freedom and Empathy collided
Any interaction with the outside world is fraught with danger when other people in the world are not careful, because of the insidious and invisible...
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Queer Eye and the chronically ill…
It was a different experience watching "Queer Eye" this time with chronic illness. How can I zhuzh things up in my life?
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The Big C
Dermatomyositis and cancer often go hand-in-hand and we don't really know why...
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Stand up, alone
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
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Exercise in Place: Part 2
Part 2 includes information to help guide local physical and occupational therapy teams and various exercise demonstrations for myositis patients and how to modify them.
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Kaniah shares, Stand Strong Together!
Stand Strong Together, Myositis Warriors!
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Janice’s Myositis Awareness Month Mask Meme
I wear a mask because I have no spleen and I am on medication for necrotizing autoimmune myopathy.
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Exercise in Place
Myositis and Exercise with occupational therapists Megan McGowan and Lauren Burgess, and physical therapists Fin Mears and Ruben Pagkatipunan.
