Important takeaways from Dr. Conrad Weihl's presentation, "Navigating the Long Term Effects of Myositis," specifically on movement/exercise and nutrition for building and preserving muscle mass...
Myositis Empower Walk Newsletter (MEWN) Edition Two. The Landman's speak with last year's Myositis Empower Walk top team fundraising captains about how team fundraising can...
In the process of dealing with Dermatomyositis, there are flares, painful aches, and weakness. I try to own it. Boss it. Then my body says,...
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
Any interaction with the outside world is fraught with danger when other people in the world are not careful, because of the insidious and invisible...
It was a different experience watching "Queer Eye" this time with chronic illness. How can I zhuzh things up in my life?
Dermatomyositis and cancer often go hand-in-hand and we don't really know why...
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
Part 2 includes information to help guide local physical and occupational therapy teams and various exercise demonstrations for myositis patients and how to modify them.
Stand Strong Together, Myositis Warriors!
I wear a mask because I have no spleen and I am on medication for necrotizing autoimmune myopathy.
Myositis and Exercise with occupational therapists Megan McGowan and Lauren Burgess, and physical therapists Fin Mears and Ruben Pagkatipunan.
Mask up! Stay safe, stay healthy, and above all stay positive.
Sharing my Myositis Mask Meme for Myositis Awareness Month, and to protect myself and others.