Jason details how volunteering with Myositis Support and Understanding improved his attitude and depression and helped him find a passion in helping others.
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
Parenting with myositis is no different than parenting without. There is no time out, no free parking! It just has a few more obstacles.
Viruses become personified. I see them as mean little soldiers standing up on door knobs ready to attack me. I watch them float through the...
It seems silly going into ED for what turned out to be just a cold, but such is my life now. You never know if...
It could have all gone horribly wrong, but it didn’t. And yes, a lot of that is luck. But a lot of it is also...
Watch "Surviving the Holidays with Myositis" on #MyositisLIFE. Learn tips to get through the holidays living with our rare disease. Megan and Lauren, occupational therapists,...
In celebration of National Caregivers Month, TMA and MSU invite myositis caregivers to join us for a conversation about the challenges of caring for someone...
Watch Ra Pharma and Zilucoplan for Potential Treatment of immune-mediated necrotizing myopathy (IMNM) and learn more about the phase 2 clinical trial.
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
Over the last 3 years of dealing with necrotizing autoimmune myopathy (NAM) I have really tried to get better at asking for help. It's still...
Ryan demonstrates what he has learned living with myositis to help to rise from a low toilet using some practical tips and tricks.
Check out some photos we captured participating as a sponsor of the 2019 TMA conference. Find information about our sponsors and partners that also attended....