Polymyositis: How to Soar Above the Disease
Before polymyositis (PM) I was like a caterpillar just consuming life. I prided myself on being busy and being the queen of multitasking. I would...
Myositis Patient Experiences
Myositis Patient ExperiencesLearn about myositis from those who live with it every day. We learn a lot from the experiences of others.
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Staying the Course
Although everyday life seems like a mad dash to the finish line honestly it’s all about staying the course and that is often easier said...
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Vaccines, Freedom, and Loss of the Pandemic Cocoon
I hope by telling my story it helps to normalize that it is okay to be scared, to even miss the time of being “stuck”...
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Confessions of a Myositis Mom
It is terrible to feel as if you have disappointed people you love, failed to follow through on promises, or are just plain missing out...
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Rainbow
My niece is 18 and has never seen me healthy. She has looked to me for strength and determination as I fight this tiresome, horrible...
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Polymyositis Life
Choosing positivity in this challenging disease and to be strong in mind, body, and soul.
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Coronavirus Precautions: Where Freedom and Empathy collided
Any interaction with the outside world is fraught with danger when other people in the world are not careful, because of the insidious and invisible...
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Finally
I don't let this disease define me. I respect it. I acknowledge it. I am actually proud at times knowing it tried to break me,...
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Stand up, alone
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
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Reflection – 20 Years Living the Myositis Life
I am so thankful that each day I face with Myositis, I am given the strength to keep going, one day at a time.
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My new life with Polymyositis
People look at me and say, “Oh there is nothing wrong with you. You are exaggerating or you want attention.” Well, we may look great...
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‘Anti-Maskers’ Actually Infringe Upon My Freedom
"We take our shoes off, we go through metal detectors, we do so many things that “infringe” upon our previously understood everyday freedoms. But we...
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Finding my happy place with IBM
Having a disease like IBM has made doing almost everything I once took for granted very challenging. Here is how I have managed to keep...
