A Few Words for the Moment Before Myositis
Myositis Awareness Month got me thinking…and really, reflecting about a time before my initial flare-up almost three years ago, when Myositis wasn’t at the forefront of...
Myositis Patient Experiences
Myositis Patient ExperiencesLearn about myositis from those who live with it every day. We learn a lot from the experiences of others.
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A Day in the Life of Someone with Myositis
This was more like “A Month in the Life” since I filmed almost every day this month for Myositis Awareness. I am extremely fortunate to...
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Getting Up from a Wheelchair with Myositis
Ryan demonstrates what he has learned to make getting up from a seated position or a wheelchair easier with myositis.
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In sickness and in health
In the 11 years that I have had Dermatomyositis, I’ve lost weight, gained weight, lost hair, sweated a lot, mastered the art of napping, had...
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Stress and Myositis
We know we cannot avoid stress; it’s simply a part of life. Whether it’s stress over our finances, relationships, job, health, or the health of...
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A Light in the Dark: My Realities with Dermatomyositis
How can I raise awareness if I'm not honest and real about all that comes with dermatomyositis?
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Coronavirus Precautions: Where Freedom and Empathy collided
Any interaction with the outside world is fraught with danger when other people in the world are not careful, because of the insidious and invisible...
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Treat my symptoms, please…but don’t patronize me
Our symptoms and histories aren’t two second sound bites. We have complicated health histories and they matter, both for us to be heard and also...
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Confessions of a Myositis Mom
It is terrible to feel as if you have disappointed people you love, failed to follow through on promises, or are just plain missing out...
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Why, why, WHY?
My little man peppers me all day with so many questions. It made me realize just how many of my own I have.
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Finally
I don't let this disease define me. I respect it. I acknowledge it. I am actually proud at times knowing it tried to break me,...
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Back to square one?
I feel like I am back to step one, after nine months of pushing through. Fighting every side effect. Fighting every symptom. I’m tired now.
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Polymyositis Life
Choosing positivity in this challenging disease and to be strong in mind, body, and soul.
