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Stress and Myositis
We know we cannot avoid stress; it’s simply a part of life. Whether it’s stress over our finances, relationships, job, health, or the health of...
Learn about myositis from those who live with it every day. We learn a lot from the experiences of others.
We know we cannot avoid stress; it’s simply a part of life. Whether it’s stress over our finances, relationships, job, health, or the health of...
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
I admit that I’m very very tired. It’s been a long 6 years of steadily worsening symptoms, especially pain and weakness, and lung involvement again...
We explain and highlight a personal account of how one patient fought the insurance company trying to deny a medication for myositis.
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
Important takeaways from Dr. Conrad Weihl's presentation, "Navigating the Long Term Effects of Myositis," specifically on movement/exercise and nutrition for building and preserving muscle mass...
I had a trach, feeding tube, and had lost 26 pounds of muscle mass with the onset of Polymyositis. I came home with the feeding...
Myositis and depression were not only affecting me, but they were also affecting my parents, my partner, my family members, and friends. The fact that...
How creative outlets such as art and writing have helped me cope with difficult things such as Dermatomyositis.
This image represents my determination, stubbornness, and desperation for something normal and happy in my #MyositisLife.
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
In the process of dealing with Dermatomyositis, there are flares, painful aches, and weakness. I try to own it. Boss it. Then my body says,...
I have Inclusion Body Myositis (IBM); a rare and degenerative muscle wasting disease. It is an autoimmune disease with my symptoms starting when I was...