A Few Words for the Moment Before Myositis
Myositis Awareness Month got me thinking…and really, reflecting about a time before my initial flare-up almost three years ago, when Myositis wasn’t at the forefront of...
Learn about myositis from those who live with it every day. We learn a lot from the experiences of others.
Myositis Awareness Month got me thinking…and really, reflecting about a time before my initial flare-up almost three years ago, when Myositis wasn’t at the forefront of...
I feel like I am back to step one, after nine months of pushing through. Fighting every side effect. Fighting every symptom. I’m tired now.
People keep telling me how resilient I am, but really, I'm just too stubborn. Too stubborn to take no for an answer. Too stubborn to...
Suddenly I looked at my husband in the New Orleans hotel room at a myositis conference and said, “Maybe I could learn to drive a...
The difference in being sick with this disease and being healthy is having to make choices or continuously think about things when the rest of...
Support and Understanding, featured in MSU's 3rd Annual A Day of Remembrance, speaks to myositis patients and caregivers both, letting us all know that we...
It took me five years to get a diagnosis, polymyositis, and different parts of my proximal muscles were getting weak every year. It started with...
I am so thankful that each day I face with Myositis, I am given the strength to keep going, one day at a time.
I realized that healing includes body, soul and mind.
Dermatomyositis and cancer often go hand-in-hand and we don't really know why...
I have had dermatomyositis, a rare, autoimmune and chronic illness all my life. What’s important, to me, isn’t my limitations. Rather it’s about showing her...
The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain....
It can be scary . . . because if I don't read my body's signals right, I could get stuck.