Surviving the Holidays with Myositis
Watch "Surviving the Holidays with Myositis" on #MyositisLIFE. Learn tips to get through the holidays living with our rare disease. Megan and Lauren, occupational therapists,...
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Tiny Hooves, Big Therapy
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The travels and tribulations of going on holiday...
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Surviving the Holidays with Myositis
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Facing rare disease alone
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Caring for Caregivers Webinar
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Surviving the Holidays with Myositis
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Watch Intro to Ra Pharma & the Potential...
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Kept Promises – “Love Never Fails”
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Take a hike Myositis
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Going out of my head
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Global Genes Patient Advocacy Summit Highlights Video 2109
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Month Five with Dermatomyositis
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Unexpected lessons learned while facing my new reality
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You must be doing fine!!!
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Getting up from a Toilet with Myositis
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MSU participates as sponsor of the 2019 TMA...
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Balancing rest and recovery with myositis
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Getting Up from a Wheelchair with Myositis
Myositis Patient Experiences
Myositis Patient ExperiencesLearn about myositis from those who live with it every day. We learn a lot from the experiences of others.
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“You’re pregnant, get used to it”
My pregnancy journey with dermatomyositis.
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Getting Up from a Wheelchair with Myositis
Ryan demonstrates what he has learned to make getting up from a seated position or a wheelchair easier with myositis.
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Coping with Loss
Anyone dealing with a chronic health condition (whether as a patient or loved one/care partner) can tell you, illness makes you think about things that...
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Going out of my head
Over the last 3 years of dealing with necrotizing autoimmune myopathy (NAM) I have really tried to get better at asking for help. It's still...
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In sickness and in health
In the 11 years that I have had Dermatomyositis, I’ve lost weight, gained weight, lost hair, sweated a lot, mastered the art of napping, had...
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Adventures with Polymyositis: My experiences and recommendations
At 63, I thought the weakness was age-related until a vacation in Europe, where it became increasingly difficult to rise from a seat and climb...
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A Day in the Life of Someone with Myositis
This was more like “A Month in the Life” since I filmed almost every day this month for Myositis Awareness. I am extremely fortunate to...
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My Journey with Polymyositis
I have polymyositis and was been diagnosed 28 years ago. Despite ups and downs in my treatments, my motto "Hope, Courage, Strength" keeps me going...
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New symptom whack-a-mole
New symptoms are not only an indication of a myositis “flare”, sometimes new symptoms mean an emergence of overlap of other conditions.
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An Open Letter: Dear Dermatomyositis
In January 2015 I was diagnosed with Dermatomyositis at the age of 36. Of course, I never heard of it. My initial reaction was mixed...
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Month Five with Dermatomyositis
I’m starting to be able to leave the house again after a couple of weeks of being really exhausted and housebound. So, things do pass....
