
Polymyositis: How to Soar Above the Disease
Before polymyositis (PM) I was like a caterpillar just consuming life. I prided myself on being busy and being the queen of multitasking. I would...
Learn about myositis from those who live with it every day. We learn a lot from the experiences of others.
Before polymyositis (PM) I was like a caterpillar just consuming life. I prided myself on being busy and being the queen of multitasking. I would...
Although everyday life seems like a mad dash to the finish line honestly it’s all about staying the course and that is often easier said...
I hope by telling my story it helps to normalize that it is okay to be scared, to even miss the time of being “stuck”...
It is terrible to feel as if you have disappointed people you love, failed to follow through on promises, or are just plain missing out...
My niece is 18 and has never seen me healthy. She has looked to me for strength and determination as I fight this tiresome, horrible...
Choosing positivity in this challenging disease and to be strong in mind, body, and soul.
Any interaction with the outside world is fraught with danger when other people in the world are not careful, because of the insidious and invisible...
I don't let this disease define me. I respect it. I acknowledge it. I am actually proud at times knowing it tried to break me,...
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
I am so thankful that each day I face with Myositis, I am given the strength to keep going, one day at a time.
People look at me and say, “Oh there is nothing wrong with you. You are exaggerating or you want attention.” Well, we may look great...
"We take our shoes off, we go through metal detectors, we do so many things that “infringe” upon our previously understood everyday freedoms. But we...
Having a disease like IBM has made doing almost everything I once took for granted very challenging. Here is how I have managed to keep...