Learn about myositis from those who live with it every day. We learn a lot from the experiences of others.
My mystery disease actually shows up as a result of the loves of my life. A mystery that is so worth each 9 months. No...
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
Suddenly I looked at my husband in the New Orleans hotel room at a myositis conference and said, “Maybe I could learn to drive a...
I was diagnosed with dermatomyositis (DM) in early 2015 when I was 22 years old. I always considered myself very healthy up until I was...
How can I raise awareness if I'm not honest and real about all that comes with dermatomyositis?
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
In January 2015 I was diagnosed with Dermatomyositis at the age of 36. Of course, I never heard of it. My initial reaction was mixed...
I have had dermatomyositis, a rare, autoimmune and chronic illness all my life. What’s important, to me, isn’t my limitations. Rather it’s about showing her...
No myositis patient should feel their medical staff is not taking them seriously, especially because of their gender.
Emily walks us step-by-step through making a fabric mask using a technique and design approved by the CDC.
Parenting with myositis is no different than parenting without. There is no time out, no free parking! It just has a few more obstacles.
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. But I am not alone!
Choosing positivity in this challenging disease and to be strong in mind, body, and soul.
