Learn about myositis from those who live with it every day. We learn a lot from the experiences of others.
I won’t give up, no worries. Sometimes I just want to SCREAM in rage at this stupid disease and the never ending cycle of flare...
It could have all gone horribly wrong, but it didn’t. And yes, a lot of that is luck. But a lot of it is also...
Before polymyositis (PM) I was like a caterpillar just consuming life. I prided myself on being busy and being the queen of multitasking. I would...
I put it in the back of my drawer...thinking that would lessen the sting of seeing it and being reminded of all I’ve lost...
My little man peppers me all day with so many questions. It made me realize just how many of my own I have.
Emily walks us step-by-step through making a fabric mask using a technique and design approved by the CDC.
Having a disease like IBM has made doing almost everything I once took for granted very challenging. Here is how I have managed to keep...
I was diagnosed with dermatomyositis (DM) in early 2015 when I was 22 years old. I always considered myself very healthy up until I was...
As I write this, I realize that a year into this diagnosis, I am finally starting to believe that I have not lost myself. In...
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
This image represents my determination, stubbornness, and desperation for something normal and happy in my #MyositisLife.
In the 11 years that I have had Dermatomyositis, I’ve lost weight, gained weight, lost hair, sweated a lot, mastered the art of napping, had...
Thoughts while recovering from my first dermatomyositis flare
