I Forgot to Grieve
Lisa Sniderman shares the story of her realization that we actually are grieving because of our chronic, rare illness and realized she hadn't grieved her...
Myositis Patient Experiences
Myositis Patient ExperiencesLearn about myositis from those who live with it every day. We learn a lot from the experiences of others.
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Rainbow
My niece is 18 and has never seen me healthy. She has looked to me for strength and determination as I fight this tiresome, horrible...
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Reflection – 20 Years Living the Myositis Life
I am so thankful that each day I face with Myositis, I am given the strength to keep going, one day at a time.
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When your body says, “NO!”
In the process of dealing with Dermatomyositis, there are flares, painful aches, and weakness. I try to own it. Boss it. Then my body says,...
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Vaccines, Freedom, and Loss of the Pandemic Cocoon
I hope by telling my story it helps to normalize that it is okay to be scared, to even miss the time of being “stuck”...
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But Muscles I Love
I suffer from Inclusion Body Myositis, so I decided to write this poem last year after starting to experience some of the symptoms of this...
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Returning from rock bottom
People keep telling me how resilient I am, but really, I'm just too stubborn. Too stubborn to take no for an answer. Too stubborn to...
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Coronavirus Precautions: Where Freedom and Empathy collided
Any interaction with the outside world is fraught with danger when other people in the world are not careful, because of the insidious and invisible...
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‘Anti-Maskers’ Actually Infringe Upon My Freedom
"We take our shoes off, we go through metal detectors, we do so many things that “infringe” upon our previously understood everyday freedoms. But we...
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Support and Understanding
Support and Understanding, featured in MSU's 3rd Annual A Day of Remembrance, speaks to myositis patients and caregivers both, letting us all know that we...
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Moving forward
My journey with Myositis and how I learn that progress isn't a straight line. Progress is where you have to keep trying and adapting.
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Keep Shining by Aoede
"Keep Shining," a collaboration with more than 20 artists, shares Lisa Sniderman's story and struggle with illness, disability and recovery, a powerful and poignant reminder...
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Queer Eye and the chronically ill…
It was a different experience watching "Queer Eye" this time with chronic illness. How can I zhuzh things up in my life?
