Learn about myositis from those who live with it every day. We learn a lot from the experiences of others.
We are all doing our best to navigate ambiguity and build resilience, and we are trying to find joy and reasons to celebrate - some...
Getting a rituximab infusion and not sure what it will involve - I share my recent experience
We can learn so much from each other so I thought I'd share some ways I have adapted to living the #MyositisLIFE and I hope...
Important takeaways from Dr. Conrad Weihl's presentation, "Navigating the Long Term Effects of Myositis," specifically on movement/exercise and nutrition for building and preserving muscle mass...
Lisa Sniderman shares the story of her realization that we actually are grieving because of our chronic, rare illness and realized she hadn't grieved her...
My niece is 18 and has never seen me healthy. She has looked to me for strength and determination as I fight this tiresome, horrible...
I am so thankful that each day I face with Myositis, I am given the strength to keep going, one day at a time.
In the process of dealing with Dermatomyositis, there are flares, painful aches, and weakness. I try to own it. Boss it. Then my body says,...
I hope by telling my story it helps to normalize that it is okay to be scared, to even miss the time of being “stuck”...
I suffer from Inclusion Body Myositis, so I decided to write this poem last year after starting to experience some of the symptoms of this...
People keep telling me how resilient I am, but really, I'm just too stubborn. Too stubborn to take no for an answer. Too stubborn to...
Any interaction with the outside world is fraught with danger when other people in the world are not careful, because of the insidious and invisible...
"We take our shoes off, we go through metal detectors, we do so many things that “infringe” upon our previously understood everyday freedoms. But we...
