Facing rare disease alone
Somehow, when you are sick, there is that feeling of dread that comes with being single that just makes you feel like this is it....
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Facing rare disease alone
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Caring for Caregivers Webinar
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Surviving the Holidays with Myositis
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Introduction to Ra Pharma & the Potential of...
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Kept Promises – “Love Never Fails”
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Take a hike Myositis
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Going out of my head
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Global Genes Patient Advocacy Summit Highlights Video 2109
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Month Five with Dermatomyositis
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Unexpected lessons learned while facing my new reality
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You must be doing fine!!!
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Getting up from a Toilet with Myositis
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MSU participates as sponsor of the 2019 TMA...
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Balancing rest and recovery with myositis
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Getting Up from a Wheelchair with Myositis
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Staying positive with dermatomyositis
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Pain Never Sleeps
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Why, why, WHY?
Loneliness
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The Other Pain of Living With Myositis
I’m feeling more and more isolated and alone because of this illness. I’ve held off writing publicly about it because then there’s pity and the...
