This image shows the mountain bike trail I rode, on Sept 20th, my first time back on the trails since my diagnosis of Dermatomyositis in May. I used to ride trails twice this distance, on MUCH harder trails. Mountain biking is a full-body workout…but Mountain biking (MTB) is my happy place – and I won’t have this disease take that away from me. This ride was hard; mentally, physically and emotionally. If you have myositis, you know the reasons why. Others don’t.
I am always cautious about sharing these victories with even my small support team – much less the “general” folks in my life; because then they start thinking, “oh! she’s all better!!” and saying things like, “I am glad you are all better” or “she must be making it (the disease) out worse then it is if she can go ride a mountain bike.”
What this image represents is my determination, stubbornness, and desperation for something normal and happy in my #MyositisLife.
Sept 20, 2019 - First time back on the Mountain Bike Trails since diagnosis (May 21, 2019)