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Jerry Williams commented on the post, When your body says, "NO!" 1 year, 3 months ago
Missing you since you passed, Melissa. We know you are looking at us and are proud of the work we continue to do to help change things so no others have to suffer as you did. We love you!
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Jerry Williams posted an update 1 year, 10 months ago
In 2022, MSU delivered projects that significantly impacted the Myositis community, work made possible by our donors and sponsors.
From the publication of our seminal paper on pain in Myositis in Rheumatology, our FDA Listening Session on Adult Dermatomyositis, to our record-giving year of almost $150k in myositis patient financial assistance and…[Read more]
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Jerry Williams commented on the post, Myositis Awareness Month Honesty 2 years, 6 months ago
It’s so great to see you writing again, @momluvs4kidz! I am sorry for your struggles, again, and so very hope that Rituxan will once again be a saving grace for your lungs and that your muscle strength improves. These flares seem to weaken us more each time. Thank you for sharing your experiences and for being so willing to help others. So much…[Read more]
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Jerry Williams posted an update 2 years, 8 months ago
MSU has given $250k in Myositis Patient Financial Assistance! https://understandingmyositis.org/250k-myositis-patient-financial-assistance/
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Jerry Williams commented on the post, My Top 10 Practical Tips for Living the Myositis Life 2 years, 8 months ago
@mimswan Great tips that can help so many others living with myositis and chronic illness. Thank you for sharing your experiences with the community. (I hope you see Lizzy’s comment and can connect!
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Jerry Williams commented on the post, Preventing frailty: What Myositis Patients CAN Do 3 years, 1 month ago
Thank you for writing this, @marylewis! There are so many wonderful gems in your article, including the reference to the protein calculator. As myositis patients, we need to move our muscles in whatever ways we can and this reinforces our Get Moving campaign. This is an opportunity to empower ourselves to advocate, find movement that will work for…[Read more]
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Jerry Williams posted an update 3 years, 5 months ago
Register and submit questions for
Myositis, Immunosuppressants and COVID Vaccine Response,
a webinar on Wednesday, June 16, 2021, at 3:00 PM Eastern TimeThis event has been updated to add additional information and special guests!
We are hosting a panel of John Hopkins physician researchers from the Myositis Center including Caoilfhionn C…[Read more]
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Jerry Williams commented on the post, Reflection – 20 Years Living the Myositis Life 3 years, 5 months ago
@mimswan Thank you for this article! It’s so important to hear about your experiences living with such a rare disease, throughout your life. I look forward to learning more about you and more of your experiences throughout your journey. This is helpful for all of us! Excellent job, and again, thank you!
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Jerry Williams posted an update 3 years, 6 months ago
Have you seen the upcoming events and webinars for Myositis Awareness Month? Tonight at 7 PM ET our Medical Advisor, Dr. Salman Bhai, joins us for Episode 1 of a NEW WEBINAR SERIES. Episode 1: Communicating with your doctor as a Myositis patient. Register to join us at…[Read more]
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Jerry Williams wrote a new post 3 years, 7 months ago
Introducing the 2021 Myositis Awareness Month Apparel Fundraiser!
Check out the 2021 MSU Myositis Awareness Month apparel campaigns! These launched yesterday, March 31, 2021, and close in 12 days!Ordering […]
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Jerry Williams posted an update 3 years, 7 months ago
Hey #MyositisLIFE’ers – Have you seen the Myositis Awareness Month Apparel campaigns? If not, here is the post on our comprehensive myositis site, https://understandingmyositis.org/2021-myositis-awareness-apparel-campaigns/
We have three (3) campaigns including #MyoRainbow, #MyoForest, #MyoHeartsandMinds. This is a limited time campaign with…[Read more]
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Jerry Williams commented on the post, Vaccines, Freedom, and Loss of the Pandemic Cocoon 3 years, 7 months ago
@efilmore Thank you for sharing the emotions you are experiencing. I haven’t yet been vaccinated so I am still stuck in my “cocoon” and while I am happy that things are opening up, but one of my fears is that people might forget that this is sort of how we live all the time. I hope that the many valuable lessons we have learned through this will…[Read more]
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Jerry Williams commented on the post, Queer Eye and the chronically ill… 4 years, 3 months ago
@lizzysawrus This is an amazing article! It’s interesting thinking about rewatching things like Queer Eye, and other shows, with an entirely different perspective. Disability aids are tough to “accept” when we are on the younger side. It took me a long time to be okay with being seen using a rollator or walker, scooter, and my trusty cane. Vanity…[Read more]
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Jerry Williams commented on the post, Stand up, alone 4 years, 5 months ago
@roberto79 Thank you for sharing your experience with the mental health side of life with myositis. It is difficult keeping a positive attitude, even on the best days. And getting others to understand what we go through each day, just trying to live a “normal” life seems impossible at times. I hope your flare subsides and you start feeling better…[Read more]
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Jerry Williams commented on the post, Kaniah shares, Stand Strong Together! 4 years, 5 months ago
@kaniahgunter Thanks for sharing your Myositis Mask Meme!
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Jerry Williams published “Meme” 4 years, 6 months ago
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Jerry Williams wrote a new post 4 years, 6 months ago
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Jerry Williams published “Meme” 4 years, 6 months ago
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Jerry Williams published “Meme” 4 years, 6 months ago
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