Pain Never Sleeps

It is a strange thing to find yourself with tears flowing but not quite realizing why; for me, this has been my experience with the chronic pain of myositis 1 min


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I wake as tears begin to flow,

I cry before I even know what brought them on,

And then,

Realization . . .

The pain that never ends, it seems has found its way into my dreams.

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Linda Rabinowitz

I'm a mom of 4 kids, diagnosed with Antisynthetase Syndrome/Dermatomyositis in 2016. My kids are all adults now (or so the law says lol!!), but my youngest who is 18 has autism and, while he continues to make incredible strides in independence, there is still a lot he needs compared to most 18yos. I was a stay at home mom for over 20 years until getting divorced. I returned to work in very early 2015, then had to stop in July 2016 as my job was very physically demanding and, being that my wrists would collapse when trying to hold even one shoebox (I worked at New Balance), it was time to stop. Now I'm just trying to find my way in this new world of chronic illness I've been thrown into.

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