#ItsMyTurn: Becoming a Plasma Donor Hero
We need plasma donors or we face a shortage of life-saving immunoglobulin therapy used to treat myositis and many other diseases. Join the #ItsMyTurn campaign.
Webinar
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Paul Kidwell Presents Five Stories at the Heart of Caregiving
Paul shares five important elements at the Heart of Caregiving from his own personal story as a Parkinson’s caregiver.
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Managing Myositis Patient Care During the COVID-19 Public Health Crisis
Dr. Rohit Aggarwal answers patient-submitted questions about COVID-19 and myositis including proper precautions to stay safe, information about immune-suppressing medications and IG, and much more.
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Exercise in Place
Myositis and Exercise with occupational therapists Megan McGowan and Lauren Burgess, and physical therapists Fin Mears and Ruben Pagkatipunan.
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5 Mental Health Touchpoints for Living Well
Babette Reeves, MA, MSW, LCSW, shares mental health tools for caring for ourselves in ways that are protective, healing, and strengthening despite the threats around...
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CDC Briefing: COVID-19 and the Chronic Disease Community
Watch the recording of the virtual briefing MSU co-sponsored with the U.S. Centers for Disease Control and Prevention (CDC), Johns Hopkins Medicine, U.C. Davis Health,...
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COVID-19 and Myositis, Live Q&A Webinar
COVID-19 and Myositis with Dr. Lisa Christopher-Stine and Dr. Christopher Mecoli, both with Johns Hopkins Myositis Center, addresses patient and caregiver submitted questions.
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Orthotics and Myositis
Watch Orthotics and Myositis and learn about different types of orthotics and braces that may be helpful for people with myositis. This is a #MyositisLIFE...
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Watch An Introduction to the PRESIDIO Clinical Trial of KZR-616 for the Treatment of Polymyositis and Dermatomyositis
Dr. Mary Katherine (MK) Farmer, MD, Rheumatologist and Senior Medical Director at Kezar Life Sciences, joined us live online on Rare Disease Day 2020 and...
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Surviving the Holidays with Myositis
Watch "Surviving the Holidays with Myositis" on #MyositisLIFE. Learn tips to get through the holidays living with our rare disease. Megan and Lauren, occupational therapists,...
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Caring for Caregivers Webinar
In celebration of National Caregivers Month, TMA and MSU invite myositis caregivers to join us for a conversation about the challenges of caring for someone...
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Watch Intro to Ra Pharma & the Potential of Zilucoplan for the Treatment of IMNM
Watch Ra Pharma and Zilucoplan for Potential Treatment of immune-mediated necrotizing myopathy (IMNM) and learn more about the phase 2 clinical trial.
