Learn about myositis from those who live with it every day. We learn a lot from the experiences of others.
Suddenly I looked at my husband in the New Orleans hotel room at a myositis conference and said, “Maybe I could learn to drive a...
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. But I am not alone!
Our symptoms and histories aren’t two second sound bites. We have complicated health histories and they matter, both for us to be heard and also...
Ryan demonstrates some myositis leg and arm exercises and techniques he has used to help him regain strength.
The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain....
These are the stairs from the condo that my family and I stayed last week for a vacation at the beach. "To be able to...
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
"Save Me" by Alyssa Smith is a song about myositis, released on Rare Disease Day 2019.
I don't let this disease define me. I respect it. I acknowledge it. I am actually proud at times knowing it tried to break me,...
Emily walks us step-by-step through making a fabric mask using a technique and design approved by the CDC.