Learn about myositis from those who live with it every day. We learn a lot from the experiences of others.
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. But I am not alone!
Our symptoms and histories aren’t two second sound bites. We have complicated health histories and they matter, both for us to be heard and also...
The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain....
These are the stairs from the condo that my family and I stayed last week for a vacation at the beach. "To be able to...
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
I don't let this disease define me. I respect it. I acknowledge it. I am actually proud at times knowing it tried to break me,...
Ryan demonstrates what he has learned living with myositis to help to rise from a low toilet using some practical tips and tricks.
New symptoms are not only an indication of a myositis “flare”, sometimes new symptoms mean an emergence of overlap of other conditions.
Living the #MyositisLIFE for many of us.