Rainbow

My niece is 18 and has never seen me healthy. She has looked to me for strength and determination as I fight this tiresome, horrible disease 1 min


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The day my niece performed this beautiful solo I was so excited and proud of her. But as myositis life goes, I fell and broke a bone in my leg and couldn’t make it. I was heartbroken.

My niece is 18 and has never seen me healthy. She has looked to me for strength and determination as I fight this tiresome, horrible disease without really complaining too much. My beautiful niece was going through a lot at school and being bullied. She was really depressed and I sent her the song that she sang in the video, Rainbow by Casey Musgraves. I just wanted her to see the beauty in herself that I see.

When I saw the video and heard her song choice I realized just how strong of a person she had become. She chose to face her bullies every day and she came out a better person because of it. She will never know how proud of her I am.


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Nicole Ace

I was diagnosed with Polymyositis at 17 in the year 2000 but the diagnosis never really fit any treatments we tried. In 2012 after being hospitalized for a month I went to John’s Hopkins Myositis Center and was quickly diagnosed with Necrotizing Autoimmune Myopathy.

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