My Life as a Vampire
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
Patients share their experiences living with dermatomyositis, one of a group of rare autoimmune diseases, the idiopathic inflammatory myopathies.
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
Viruses become personified. I see them as mean little soldiers standing up on door knobs ready to attack me. I watch them float through the...
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
Although my siblings tell me everything is fine, I know it's not. I'm with my mother every day... there's no way to make it look...
It is a strange thing to find yourself with tears flowing but not quite realizing why; for me, this has been my experience with the...
How do you stay positive when fatigue is getting you down?
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
My mystery disease actually shows up as a result of the loves of my life. A mystery that is so worth each 9 months. No...
I’m starting to be able to leave the house again after a couple of weeks of being really exhausted and housebound. So, things do pass....
Our dad's time with dermatomyositis was only a small portion of his life, although a very monumental time in our life.
Lisa Sniderman shares the story of her realization that we actually are grieving because of our chronic, rare illness and realized she hadn't grieved her...
My pregnancy journey with dermatomyositis.