The travels and tribulations of going on holiday with chronic illness
It could have all gone horribly wrong, but it didn’t. And yes, a lot of that is luck. But a lot of it is also...
Dermatomyositis
Patients share their experiences living with dermatomyositis, one of a group of rare autoimmune diseases, the idiopathic inflammatory myopathies.
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That D**n Pay Stub
I put it in the back of my drawer...thinking that would lessen the sting of seeing it and being reminded of all I’ve lost...
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Kaniah shares, Stand Strong Together!
Stand Strong Together, Myositis Warriors!
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Waiting
Thoughts while recovering from my first dermatomyositis flare
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Balancing rest and recovery with myositis
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
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A Light in the Dark: My Realities with Dermatomyositis
How can I raise awareness if I'm not honest and real about all that comes with dermatomyositis?
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Navigating ambiguity, building resilience, and celebrating wins: what I have learned after three years with a rare disease
We are all doing our best to navigate ambiguity and build resilience, and we are trying to find joy and reasons to celebrate - some...
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In sickness and in health
In the 11 years that I have had Dermatomyositis, I’ve lost weight, gained weight, lost hair, sweated a lot, mastered the art of napping, had...
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Long, cold, myositis winter: The realities of living with myositis and germs
Viruses become personified. I see them as mean little soldiers standing up on door knobs ready to attack me. I watch them float through the...
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My Mom Has Dermatomyositis (DM)
Although my siblings tell me everything is fine, I know it's not. I'm with my mother every day... there's no way to make it look...
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Faith in the Midst of Dermatomyositis
The difference in being sick with this disease and being healthy is having to make choices or continuously think about things when the rest of...
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An Open Letter: Dear Dermatomyositis
In January 2015 I was diagnosed with Dermatomyositis at the age of 36. Of course, I never heard of it. My initial reaction was mixed...
