Returning from rock bottom
People keep telling me how resilient I am, but really, I'm just too stubborn. Too stubborn to take no for an answer. Too stubborn to...
Patients share their experiences living with dermatomyositis, one of a group of rare autoimmune diseases, the idiopathic inflammatory myopathies.
People keep telling me how resilient I am, but really, I'm just too stubborn. Too stubborn to take no for an answer. Too stubborn to...
I have had dermatomyositis, a rare, autoimmune and chronic illness all my life. What’s important, to me, isn’t my limitations. Rather it’s about showing her...
Our dad's time with dermatomyositis was only a small portion of his life, although a very monumental time in our life.
In the 11 years that I have had Dermatomyositis, I’ve lost weight, gained weight, lost hair, sweated a lot, mastered the art of napping, had...
I’m starting to be able to leave the house again after a couple of weeks of being really exhausted and housebound. So, things do pass....
My pregnancy journey with dermatomyositis.
I put it in the back of my drawer...thinking that would lessen the sting of seeing it and being reminded of all I’ve lost...
We are all doing our best to navigate ambiguity and build resilience, and we are trying to find joy and reasons to celebrate - some...
It can be scary . . . because if I don't read my body's signals right, I could get stuck.
Dr. Mary Katherine (MK) Farmer, MD, Rheumatologist and Senior Medical Director at Kezar Life Sciences, joined us live online on Rare Disease Day 2020 and...
In January 2015 I was diagnosed with Dermatomyositis at the age of 36. Of course, I never heard of it. My initial reaction was mixed...
Stand Strong Together, Myositis Warriors!
Although my siblings tell me everything is fine, I know it's not. I'm with my mother every day... there's no way to make it look...