64

Rare Disease Patient Advocates

We thought you would like to see a fun moment from the Global Genes Patient Advocacy Summit.

Seth Rothberg, co-founder of Our Odyssey and a rare disease advocate and motivational speaker, and Lynn Wilson, Vice President of Myositis Support and Understanding (MSU), having some fun at the Global Genes Patient Advocacy Summit in San Diego, CA, last month!  See the full highlights video and learn more about Global Genes here.

Myositis patients, ask family and friends to donate plasma

 


Find Lynn and Seth at 1:09 of the video above.


Like it? Share with your friends!

64

What's Your Reaction?

I Care I Care
0
I Care
Like Like
4
Like
Empowering Empowering
5
Empowering
Funny Funny
1
Funny
Myositis Support

This is the official #MyositisLIFE account of Myositis Support and Understanding Association (MSU),  a patient-led, patient-centered, all-volunteer 501(c)(3) nonprofit organization founded by myositis patients for myositis patients and caregivers.

MSU is Empowering the Myositis Community through education, support, advocacy, clinical trial matching, financial assistance, and access to research. We are working to improve the day to day lives of myositis patients and their caregivers. Learn more about MSU and myositis by visiting our comprehensive myositis website at Understandingmyositis.org.

As a nonprofit organization, MSU relies on donations in order to provide crucial programs and services to the community. If you are able, make a donation of any amount today.

Tip: When shopping Amazon.com, add a "Smile" first and raise money for MSU at no cost to you. Visit Smile.Amazon.com and choose Myositis Support and Understanding as your nonprofit, or use this link: http://smile.amazon.com/ch/47-4570748.

Comments

comments

One Comment

Choose A Format
Story
Formatted Text with Embeds and Visuals
Video
Youtube, Vimeo or Vine Embeds
Meme
Upload your own images to make custom memes
Image
Photo or GIF