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Lynn Wilson and Seth Rothberg at Global Genes Rare Patient Advocacy Summit 2019

Rare Disease Patient Advocates

We thought you would like to see a fun moment from the Global Genes Patient Advocacy Summit.

Seth Rothberg, co-founder of Our Odyssey and a rare disease advocate and motivational speaker, and Lynn Wilson, Vice President of Myositis Support and Understanding (MSU), having some fun at the Global Genes Patient Advocacy Summit in San Diego, CA, last month!  See the full highlights video and learn more about Global Genes here.


Find Lynn and Seth at 1:09 of the video above.

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Myositis Support

This is the official #MyositisLIFE account of Myositis Support and Understanding Association (MSU),  a patient-led, patient-centered, all-volunteer 501(c)(3) nonprofit organization founded by myositis patients for myositis patients and caregivers.

MSU is Empowering the Myositis Community through education, support, advocacy, clinical trial matching, financial assistance, and access to research. We are working to improve the day to day lives of myositis patients and their caregivers. Learn more about MSU and myositis by visiting our comprehensive myositis website at Understandingmyositis.org.

As a nonprofit organization, MSU relies on donations in order to provide crucial programs and services to the community. If you are able, make a donation of any amount today.

Tip: When shopping Amazon.com, add a "Smile" first and raise money for MSU at no cost to you. Visit Smile.Amazon.com and choose Myositis Support and Understanding as your nonprofit, or use this link: http://smile.amazon.com/ch/47-4570748.

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