64
1 comment, 64 points

Rare Disease Patient Advocates

We thought you would like to see a fun moment from the Global Genes Patient Advocacy Summit.

Seth Rothberg, co-founder of Our Odyssey and a rare disease advocate and motivational speaker, and Lynn Wilson, Vice President of Myositis Support and Understanding (MSU), having some fun at the Global Genes Patient Advocacy Summit in San Diego, CA, last month!  See the full highlights video and learn more about Global Genes here.

Myositis patients, donate plasma

 


Find Lynn and Seth at 1:09 of the video above.


Like it? Share with your friends!

64
1 comment, 64 points

What's Your Reaction?

I Care I Care
0
I Care
Like Like
3
Like
Empowering Empowering
4
Empowering
Funny Funny
1
Funny
Myositis Support

Myositis Support and Understanding Association (MSU) is a patient-led, patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community! MSU was founded by myositis patients for myositis patients and caregivers and offers education, various support options, advocacy, clinical trial matching, financial assistance, and access to research. Visit our comprehensive myositis website at Understandingmyositis.org.

Comments

comments

One Comment

Choose A Format
Story
Formatted Text with Embeds and Visuals
Video
Youtube, Vimeo or Vine Embeds
Meme
Upload your own images to make custom memes
Image
Photo or GIF

Send this to a friend