MSU supports our myositis community members who are Black and are other People of Color (POC)

The vision statement for MSU says that we aim to “create a world where patients, caregivers, and providers have better knowledge, support, and understanding of myositis.” However, until systemic oppression is addressed in policing, education, medicine, and in countless other places, we will never be able to achieve this vision.1 min


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MSU supports our myositis community members who are Black and are other People of Color (POC)

MSU was built on the idea that myositis patients and caregivers could form a community of family who would be there for each other while learning ways to cope with our rare disease. We have an opportunity today to stand with each other more than ever.

The vision statement for MSU says that we aim to “create a world where patients, caregivers, and providers have better knowledge, support, and understanding of myositis.” However, until systemic oppression is addressed in policing, education, medicine, and in countless other places, we will never be able to achieve this vision. We unequivocally state our support for racial equality and justice for those wrongfully killed, the Black Lives Matter movement, and the constitutional right to protest peacefully around the United States. Additionally, we recognize that autoimmune disease and myositis, specifically, disproportionately affect Black women and the healthcare system often leaves Black people and other People of Color (POC) behind in access to care, testing, treatments, and compassion.

To this end, MSU sets the following goals, to:

Myositis patients, ask family and friends to donate plasma
  • Amplify the voices of our Black members, other members who are POC, and their stories of health care inequality.
  • Cultivate relationships with Black-led and other POC-led health organizations and find ways to support their missions.
  • Continue to support people with myositis through online and video support groups and our financial assistance program.
  • Support research into the ways medical disparity affects Black people and POC with myositis.

Suggestions our MSU community can do to support our Black and other POC members:


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Myositis Support

This is the official #MyositisLIFE account of Myositis Support and Understanding Association (MSU),  a patient-led, patient-centered, all-volunteer 501(c)(3) nonprofit organization founded by myositis patients for myositis patients and caregivers.

MSU is Empowering the Myositis Community through education, support, advocacy, clinical trial matching, financial assistance, and access to research. We are working to improve the day to day lives of myositis patients and their caregivers. Learn more about MSU and myositis by visiting our comprehensive myositis website at Understandingmyositis.org.

As a nonprofit organization, MSU relies on donations in order to provide crucial programs and services to the community. If you are able, make a donation of any amount today.

Tip: When shopping Amazon.com, add a "Smile" first and raise money for MSU at no cost to you. Visit Smile.Amazon.com and choose Myositis Support and Understanding as your nonprofit, or use this link: http://smile.amazon.com/ch/47-4570748.

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