Myositis Support and Understanding (MSU), an all-volunteer patient-led 501(c)(3) nonprofit organization once again participated in the TMA Annual Patient Conference as a sponsor, this year in Minneapolis, MN. As in years past, our sponsorship included an exhibit table where we share who we are and the work we do. This year we placed a large focus on our #MyositisLIFE program and website (the site you are on now!), which was launched in May 2019; a platform designed specifically for giving a voice to myositis patients and caregivers. We also provided myositis education sheets, some free MSU swag such as wristbands and pens, NeedyMeds drug discount cards, and information about some of our partners. Our #MyositisWarrior and #MyositisLIFE t-shirts were big sellers as well! It was such an honor to meet so many of you who attended.
Check out some of the photos we captured during the conference, including some with our members, newly diagnosed patients, our wonderful caregivers, TMA staff, and some of our sponsors and partners that also attended.
Mary Jane DeLauder Memorial Fund, 2019 Award
Since Mary Jane DeLauder’s (MJ) passing in June of this year, we continue to miss her and her spirit of passionately helping and educating those living with sporadic inclusion body myositis (sIBM) in our support groups and beyond. However, her legacy lives on thanks to her husband, Dick DeLauder and Myositis Support and Understanding (MSU), with the help and support of The Myositis Association (TMA), by forming the Mary Jane DeLauder Memorial Fund.
We granted the first annual Mary Jane DeLauder Memorial Fund award this year, which provides sIBM patients and their caregiver an all-expenses-paid trip to attend the 2019 TMA Annual Patient Conference. Learn more.
Do you have photos you would like to share?
If you have photos you would like to share with us to post publicly we invite you to compose a post here on #MyositisLIFE. Start by clicking the Compose button and register as a contributing author. Or, feel free to email the photos to us at firstname.lastname@example.org. Be sure to include a caption, a title for the post, and a short story or description to include with the photos.
Get involved with our partners
Below is information about some of the partners we highlighted during the conference at our exhibit. For additional patient opportunities, check out our comprehensive myositis website at https://Understandingmyositis.org.
Learn more about our sponsors
Show our sponsors some love and learn more about the clinical trials, research, and services they provide. See additional details about our sponsors by visiting our sponsors page.
Sponorships for 2020 are available. Please contact us if you serve the myositis community and are interested.