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Webinar

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Caring for Caregivers Webinar

In celebration of National Caregivers Month, TMA and MSU invite myositis caregivers to join us for a conversation about the challenges of caring for someone with myositis and resources available to help. 1 min

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Watch Caring for Caregivers

Caring for Caregivers: A webinar from The Myositis Association (TMA) and Myositis Support and Understanding (MSU).

In celebration of National Family Caregivers Month, TMA and MSU collaborated to provide a conversation about the challenges of caring for someone with myositis and resources available to help.

Featured speakers include:

Contact Information

Jill Kagan
Program Director ARCH National Respite Network and Resource Center
http://www.archrespite.org
703.256.2084
jkagan@archrespite.org

Jenny West
Community Educator for Caregiving & Aging
www.familymeans.org
651-439-4840

Here are some helpful resources. 

Myositis Support and Understanding

The Myositis Association

ARCH National Respite Network and Resource Center

Eldercare Locator  (800) 677-1116

Well Spouse

Medicare (800) MEDICARE

Family Caregiver Alliance  (800) 445-8106

National Council on Aging BenefitsCheckUp

Nine Steps to Respite

The ABCs of Respite: A Consumer Guide for Family Caregivers

State Respite Coalitions

National Respite Locator Service

Eldercare Locator  1-800-677-1116

Veteran’s Caregiver Support Program 1-855-260-3274

Caregiver Support

The Myositis Support Community

Join The Myositis Support Community for anonymous, 24/7 online support.

Join Today

Caregiver Resources

Find helpful resources

Get additional caregiver and care partner resources.

Visit Resources

UPCOMING MYOSITIS EVENTS

See what we have planned

Check out our comprehensive myositis website for more information about myositis, MSU, and to find upcoming events, including our monthly patient video support sessions.

Myositis Events
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Myositis Support

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This is the official #MyositisLIFE account of Myositis Support and Understanding Association (MSU),  a patient-led, patient-centered, all-volunteer 501(c)(3) nonprofit organization founded by myositis patients for myositis patients and caregivers.

MSU is Empowering the Myositis Community through education, support, advocacy, clinical trial matching, financial assistance, and access to research. We are working to improve the day to day lives of myositis patients and their caregivers. Learn more about MSU and myositis by visiting our comprehensive myositis website at Understandingmyositis.org.

As a nonprofit organization, MSU relies on donations in order to provide crucial programs and services to the community. If you are able, make a donation of any amount today.

Tip: When shopping Amazon.com, add a "Smile" first and raise money for MSU at no cost to you. Visit Smile.Amazon.com and choose Myositis Support and Understanding as your nonprofit, or use this link: http://smile.amazon.com/ch/47-4570748.

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