Wearing my mask to fight
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Patients share their experiences living with dermatomyositis, one of a group of rare autoimmune diseases, the idiopathic inflammatory myopathies.
Lisa shares her Myositis Mask Meme for Myositis Awareness Month, protecting immune suppressed patients and others due to COVID-19
We may be socially distanced but we have never needed each other more. <3 Thank you MSU and Corbus for all you do for myositis...
We are going to be here for a while. So, make yourself comfortable. Dig out those blankets for the sofa. Stock up (but don’t hoard)...
I feel like I am back to step one, after nine months of pushing through. Fighting every side effect. Fighting every symptom. I’m tired now.
Dr. Mary Katherine (MK) Farmer, MD, Rheumatologist and Senior Medical Director at Kezar Life Sciences, joined us live online on Rare Disease Day 2020 and...
Parenting with myositis is no different than parenting without. There is no time out, no free parking! It just has a few more obstacles.
Viruses become personified. I see them as mean little soldiers standing up on door knobs ready to attack me. I watch them float through the...
It seems silly going into ED for what turned out to be just a cold, but such is my life now. You never know if...
It could have all gone horribly wrong, but it didn’t. And yes, a lot of that is luck. But a lot of it is also...
Somehow, when you are sick, there is that feeling of dread that comes with being single that just makes you feel like this is it....
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...