MAY IS MYOSITIS AWARENESS MONTH!
Like others I know living with Myositis, my pre-COVID-19 days are very similar to the current situation with stay home, social distancing, and wearing masks in public recommendations. I have had Myositis for 7 years.
I stay home for 3 reasons:
1. I am on an immune-suppressing medication for treatment of Dermatomyositis. I am on Prednisone which suppresses the immune system and places me at a higher risk of infection. Because of this, for many years I have had to implement sometimes extreme germ-avoidance methods.
2. Dermatomyositis with the JO-1 Ab, has given me Interstitial Lung Disease/Pulmonary Fibrosis. If I contact Covid-19, my doctor team advised me it could be fatal for me.
3. Oftentimes I am too weak to leave the house. Social isolation is my normal. This is nothing new for me. Muscle weakness and extreme fatigue are my normal.
I know how this isolation feels and I am sorry my family members and friends now endure the same. But remember, this is temporary. It's a must to save lives and that's what matters.
Stay well, check on the elderly if you can. A smile by phone, card or text means the world to those who regularly live in isolation.