Unexpected lessons learned while facing my new reality
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
We can learn so much from each other so I thought I'd share some ways I have adapted to living the #MyositisLIFE and I hope...
I’m starting to be able to leave the house again after a couple of weeks of being really exhausted and housebound. So, things do pass....
People keep telling me how resilient I am, but really, I'm just too stubborn. Too stubborn to take no for an answer. Too stubborn to...
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
In the process of dealing with Dermatomyositis, there are flares, painful aches, and weakness. I try to own it. Boss it. Then my body says,...
My journey with Myositis and how I learn that progress isn't a straight line. Progress is where you have to keep trying and adapting.
Somehow, when you are sick, there is that feeling of dread that comes with being single that just makes you feel like this is it....
Support and Understanding, featured in MSU's 3rd Annual A Day of Remembrance, speaks to myositis patients and caregivers both, letting us all know that we...
I feel like I am back to step one, after nine months of pushing through. Fighting every side effect. Fighting every symptom. I’m tired now.
Over the last 3 years of dealing with necrotizing autoimmune myopathy (NAM) I have really tried to get better at asking for help. It's still...
Watch "Surviving the Holidays with Myositis" on #MyositisLIFE. Learn tips to get through the holidays living with our rare disease. Megan and Lauren, occupational therapists,...