Back to square one?
I feel like I am back to step one, after nine months of pushing through. Fighting every side effect. Fighting every symptom. I’m tired now.
I feel like I am back to step one, after nine months of pushing through. Fighting every side effect. Fighting every symptom. I’m tired now.
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
Somehow, when you are sick, there is that feeling of dread that comes with being single that just makes you feel like this is it....
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
People keep telling me how resilient I am, but really, I'm just too stubborn. Too stubborn to take no for an answer. Too stubborn to...
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
Over the last 3 years of dealing with necrotizing autoimmune myopathy (NAM) I have really tried to get better at asking for help. It's still...
We can learn so much from each other so I thought I'd share some ways I have adapted to living the #MyositisLIFE and I hope...
We are going to be here for a while. So, make yourself comfortable. Dig out those blankets for the sofa. Stock up (but don’t hoard)...
In the process of dealing with Dermatomyositis, there are flares, painful aches, and weakness. I try to own it. Boss it. Then my body says,...
I’m starting to be able to leave the house again after a couple of weeks of being really exhausted and housebound. So, things do pass....
Support and Understanding, featured in MSU's 3rd Annual A Day of Remembrance, speaks to myositis patients and caregivers both, letting us all know that we...
My journey with Myositis and how I learn that progress isn't a straight line. Progress is where you have to keep trying and adapting.