I won’t give up, no worries. Sometimes I just want to SCREAM in rage at this stupid disease and the never ending cycle of flare...
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
My pregnancy journey with dermatomyositis.
These are the stairs from the condo that my family and I stayed last week for a vacation at the beach. "To be able to...
Choosing positivity in this challenging disease and to be strong in mind, body, and soul.
No myositis patient should feel their medical staff is not taking them seriously, especially because of their gender.
The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain....
Living the #MyositisLIFE for many of us.
How can I raise awareness if I'm not honest and real about all that comes with dermatomyositis?
Our symptoms and histories aren’t two second sound bites. We have complicated health histories and they matter, both for us to be heard and also...
We explain and highlight a personal account of how one patient fought the insurance company trying to deny a medication for myositis.
New symptoms are not only an indication of a myositis “flare”, sometimes new symptoms mean an emergence of overlap of other conditions.
I realized that healing includes body, soul and mind.