Unexpected lessons learned while facing my new reality
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
Patients share their experiences living with dermatomyositis, one of a group of rare autoimmune diseases, the idiopathic inflammatory myopathies.
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
Although my siblings tell me everything is fine, I know it's not. I'm with my mother every day... there's no way to make it look...
These are the stairs from the condo that my family and I stayed last week for a vacation at the beach. "To be able to...
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
I don't let this disease define me. I respect it. I acknowledge it. I am actually proud at times knowing it tried to break me,...
Stand Strong Together, Myositis Warriors!
Somehow, when you are sick, there is that feeling of dread that comes with being single that just makes you feel like this is it....
Myositis Awareness Month got me thinking…and really, reflecting about a time before my initial flare-up almost three years ago, when Myositis wasn’t at the forefront of...
My pregnancy journey with dermatomyositis.
Anyone dealing with a chronic health condition (whether as a patient or loved one/care partner) can tell you, illness makes you think about things that...
I won’t give up, no worries. Sometimes I just want to SCREAM in rage at this stupid disease and the never ending cycle of flare...