My Journey with Polymyositis
I have polymyositis and was been diagnosed 28 years ago. Despite ups and downs in my treatments, my motto "Hope, Courage, Strength" keeps me going...
I have polymyositis and was been diagnosed 28 years ago. Despite ups and downs in my treatments, my motto "Hope, Courage, Strength" keeps me going...
Although my siblings tell me everything is fine, I know it's not. I'm with my mother every day... there's no way to make it look...
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. But I am not alone!
I’m feeling more and more isolated and alone because of this illness. I’ve held off writing publicly about it because then there’s pity and the...
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
My mystery disease actually shows up as a result of the loves of my life. A mystery that is so worth each 9 months. No...
I am so thankful that each day I face with Myositis, I am given the strength to keep going, one day at a time.
People keep telling me how resilient I am, but really, I'm just too stubborn. Too stubborn to take no for an answer. Too stubborn to...
I put it in the back of my drawer...thinking that would lessen the sting of seeing it and being reminded of all I’ve lost...
Getting a rituximab infusion and not sure what it will involve - I share my recent experience
I don't let this disease define me. I respect it. I acknowledge it. I am actually proud at times knowing it tried to break me,...
These are the stairs from the condo that my family and I stayed last week for a vacation at the beach. "To be able to...
How can I raise awareness if I'm not honest and real about all that comes with dermatomyositis?