Returning from rock bottom
People keep telling me how resilient I am, but really, I'm just too stubborn. Too stubborn to take no for an answer. Too stubborn to...
People keep telling me how resilient I am, but really, I'm just too stubborn. Too stubborn to take no for an answer. Too stubborn to...
Over the last 3 years of dealing with necrotizing autoimmune myopathy (NAM) I have really tried to get better at asking for help. It's still...
I am so thankful that each day I face with Myositis, I am given the strength to keep going, one day at a time.
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
Thoughts while recovering from my first dermatomyositis flare
These are the stairs from the condo that my family and I stayed last week for a vacation at the beach. "To be able to...
How can I raise awareness if I'm not honest and real about all that comes with dermatomyositis?
I don't let this disease define me. I respect it. I acknowledge it. I am actually proud at times knowing it tried to break me,...
Although my siblings tell me everything is fine, I know it's not. I'm with my mother every day... there's no way to make it look...
My mystery disease actually shows up as a result of the loves of my life. A mystery that is so worth each 9 months. No...
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. But I am not alone!
If you are reading this in good health, I wish you more of the same. Those of you, like me, who are currently unwell, or...
Getting a rituximab infusion and not sure what it will involve - I share my recent experience