Take a hike Myositis
It can be scary . . . because if I don't read my body's signals right, I could get stuck.
Patients share their experiences living with dermatomyositis, one of a group of rare autoimmune diseases, the idiopathic inflammatory myopathies.
It can be scary . . . because if I don't read my body's signals right, I could get stuck.
I’m starting to be able to leave the house again after a couple of weeks of being really exhausted and housebound. So, things do pass....
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
This image represents my determination, stubbornness, and desperation for something normal and happy in my #MyositisLife.
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
How do you stay positive when fatigue is getting you down?
It is a strange thing to find yourself with tears flowing but not quite realizing why; for me, this has been my experience with the...
Thoughts while recovering from my first dermatomyositis flare
I won’t give up, no worries. Sometimes I just want to SCREAM in rage at this stupid disease and the never ending cycle of flare...
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
My pregnancy journey with dermatomyositis.
These are the stairs from the condo that my family and I stayed last week for a vacation at the beach. "To be able to...
How can I raise awareness if I'm not honest and real about all that comes with dermatomyositis?