This is our life now
Inclusion Body Myositis does not change the way you love your parent. It should not change the way you look at your parent. I had...
Myositis Caregiver Experiences
Myositis Caregiver ExperiencesLearn from and with other myositis caregivers, spouses, and care partners and share yours with us. We learn so much from the experiences of others.
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Care Giver, A Poem
For Mavis, Love Stella. A Caregiver poem for a dear friend. I am the care giver you see me every where, but what you don’t...
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Sadly my mum lost her battle as an IBM warrior
Mums journey with inclusion body myositis was a very difficult one.Following her first fall mum noticed she was falling more and more often, she saw...
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Myositis Awareness Day And My Husband’s Diagnosis
I thank God for each day that I’m able to love and support him the way that he’s always loved and supported me. We still...
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The Most Suckiest but Best things about my Mommy having Myositis
I feel peaceful because I usually behave well because I know how hard things are for my mommy. I am peaceful because I have learned...
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5 Week Road trip to Yellowstone with IBM Adventurers
Here are our lessons learned for traveling with an IBM’r who requires a patient lift for transfers: Finding suitable hotel rooms was the biggest challenge....