A Day in the Life of Someone with Myositis

This was more like “A Month in the Life” since I filmed almost every day this month for Myositis Awareness. I am extremely fortunate to have the support that I do. I hope you enjoy my #MyositisLIFE! 1 min


3
1 comment, 3 points

This was more like “A Month in the Life” since I filmed almost every day this month for Myositis Awareness :). I am extremely fortunate to have the support that I do. I hope you enjoy my #MyositisLIFE!

Myositis patients, donate plasma

Angela is an adult living with juvenile dermatomyositis. (When a child is diagnosed with juvenile myositis, that diagnosis extends into adulthood)


Like it? Share with your friends!

3
1 comment, 3 points

What's Your Reaction?

I Care I Care
0
I Care
Like Like
0
Like
Empowering Empowering
1
Empowering
Funny Funny
0
Funny
Myositis Support

Myositis Support and Understanding Association (MSU) is a patient-led, patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community! MSU was founded by myositis patients for myositis patients and caregivers and offers education, various support options, advocacy, clinical trial matching, financial assistance, and access to research. Visit our comprehensive myositis website at Understandingmyositis.org.

Comments

comments

One Comment

  1. I related tothe part where you talk about “why me” and how other people do the same and are fine. I can relate the way you describe how you cope with that. Your 3 year old is hilarious the way she mimicks you! Are those baby tortoises?

Choose A Format
Story
Formatted Text with Embeds and Visuals
Video
Youtube, Vimeo or Vine Embeds
Meme
Upload your own images to make custom memes
Image
Photo or GIF

Send this to a friend