A Day in the Life of Someone with Myositis

This was more like “A Month in the Life” since I filmed almost every day this month for Myositis Awareness. I am extremely fortunate to have the support that I do. I hope you enjoy my #MyositisLIFE! 1 min


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This was more like “A Month in the Life” since I filmed almost every day this month for Myositis Awareness :). I am extremely fortunate to have the support that I do. I hope you enjoy my #MyositisLIFE!

Myositis patients, donate plasma

Angela is an adult living with juvenile dermatomyositis. (When a child is diagnosed with juvenile myositis, that diagnosis extends into adulthood)


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Myositis Support

Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community!

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Myositis Support and Understanding

Myositis Pain & Opioids Survey

Please take the anonymous survey whether or not you experience pain with myositis. Survey ends June 4, 2019. This initial data is needed to determine if a larger study is warranted.

Link to Survey

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