A Day in the Life of Someone with Myositis

This was more like “A Month in the Life” since I filmed almost every day this month for Myositis Awareness. I am extremely fortunate to have the support that I do. I hope you enjoy my #MyositisLIFE! 1 min


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This was more like “A Month in the Life” since I filmed almost every day this month for Myositis Awareness :). I am extremely fortunate to have the support that I do. I hope you enjoy my #MyositisLIFE!

Myositis patients, ask family and friends to donate plasma

Angela is an adult living with juvenile dermatomyositis. (When a child is diagnosed with juvenile myositis, that diagnosis extends into adulthood)


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Myositis Support

This is the official #MyositisLIFE account of Myositis Support and Understanding Association (MSU),  a patient-led, patient-centered, all-volunteer 501(c)(3) nonprofit organization founded by myositis patients for myositis patients and caregivers.

MSU is Empowering the Myositis Community through education, support, advocacy, clinical trial matching, financial assistance, and access to research. We are working to improve the day to day lives of myositis patients and their caregivers. Learn more about MSU and myositis by visiting our comprehensive myositis website at Understandingmyositis.org.

As a nonprofit organization, MSU relies on donations in order to provide crucial programs and services to the community. If you are able, make a donation of any amount today.

Tip: When shopping Amazon.com, add a "Smile" first and raise money for MSU at no cost to you. Visit Smile.Amazon.com and choose Myositis Support and Understanding as your nonprofit, or use this link: http://smile.amazon.com/ch/47-4570748.

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  1. I related tothe part where you talk about “why me” and how other people do the same and are fine. I can relate the way you describe how you cope with that. Your 3 year old is hilarious the way she mimicks you! Are those baby tortoises?

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