Waiting
Thoughts while recovering from my first dermatomyositis flare
-
Staying positive with dermatomyositis
-
Pain Never Sleeps
-
Why, why, WHY?
-
Waiting
-
Leg and Arm Exercises for Myositis
-
I’m…so…FRUSTRATED!!
-
My Life as a Vampire
-
“You’re pregnant, get used to it”
-
Long time coming…
-
Poly Life
-
Feeling like you need your Caregiver to substantiate...
-
The pain med taper debacle
-
Here I am
-
A Light in the Dark: My Realities with...
-
Treat my symptoms, please…but don’t patronize me
-
Advocating for Yourself in the Midst of Insurance...
-
New symptom whack-a-mole
-
The Heart of Healing
I Care
I Care
Most Discussed
-
-
A Light in the Dark: My Realities with Dermatomyositis
How can I raise awareness if I'm not honest and real about all that comes with dermatomyositis?
-
Pregnancy and Dermatomyositis
My mystery disease actually shows up as a result of the loves of my life. A mystery that is so worth each 9 months. No...
-
Pain Never Sleeps
It is a strange thing to find yourself with tears flowing but not quite realizing why; for me, this has been my experience with the...
-
Feeling like you need your Caregiver to substantiate your symptoms
No myositis patient should feel their medical staff is not taking them seriously, especially because of their gender.
-
Here I am
Living the #MyositisLIFE for many of us.
-
My Mom Has Dermatomyositis (DM)
Although my siblings tell me everything is fine, I know it's not. I'm with my mother every day... there's no way to make it look...
-
What does chronic illness mental fatigue feel like?
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. But I am not alone!
-
I’m…so…FRUSTRATED!!
I won’t give up, no worries. Sometimes I just want to SCREAM in rage at this stupid disease and the never ending cycle of flare...
-
“You’re pregnant, get used to it”
My pregnancy journey with dermatomyositis.
-
Poly Life
Choosing positivity in this challenging disease and to be strong in mind, body, and soul.
-
The pain med taper debacle
The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain....
