I Care I feel like I am back to step one, after nine months of pushing through. Fighting every side effect. Fighting every symptom. I’m tired now.
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
Having a disease like IBM has made doing almost everything I once took for granted very challenging. Here is how I have managed to keep...
Somehow, when you are sick, there is that feeling of dread that comes with being single that just makes you feel like this is it....
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
This image represents my determination, stubbornness, and desperation for something normal and happy in my #MyositisLife.
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
Over the last 3 years of dealing with necrotizing autoimmune myopathy (NAM) I have really tried to get better at asking for help. It's still...
We are going to be here for a while. So, make yourself comfortable. Dig out those blankets for the sofa. Stock up (but don’t hoard)...
It could have all gone horribly wrong, but it didn’t. And yes, a lot of that is luck. But a lot of it is also...
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
Thoughts while recovering from my first dermatomyositis flare
How can I raise awareness if I'm not honest and real about all that comes with dermatomyositis?
