Paul Kidwell Presents Five Stories at the Heart of Caregiving

Paul shares five important elements at the Heart of Caregiving from his own personal story as a Parkinson’s caregiver. 1 min


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Watch Paul Kidwell Presents 5 Stories at the Heart of Caregiving

Watch the recording of “Paul Kidwell Presents Five Stories at the Heart of Caregiving.”

Paul shares five important elements at the Heart of Caregiving from his own personal story as a Parkinson’s caregiver. For over a decade Paul and his wife have lived a life of love, loss, and cooking as they have lived within the context of this unforgiving disease. He will share his personal caregiving experiences and the five influences that helped shape his story.

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Our speaker for the session

Paul Kidwell is a Boston-based, independent public relations/patient advocacy consultant providing media relations and patient engagement support for biopharmaceutical companies. Paul has more than 20 years of corporate and agency communications experience within the life science sector. During this time Paul has provided integrated public relations support for product launches, FDA approvals, national and international media campaigns, patient advocacy programs, supported major industry conferences, medical meetings and trade shows, and developed media strategies for the placement of stories in global top tier business and trade media.

Paul has been involved in strategic programs with a focus on media and analyst outreach, event support, internal communications and collateral development for clients in many key therapeutic areas, include: oncology, central nervous system, autoimmune disease, personalized medicine and many rare disease categories. He has created and implemented successful media relations and advocacy communications campaigns directed at business and scientific trade press, enabling his clients to achieve a higher level of visibility among potential investors and business partner audiences.

Paul’s patient advocacy experience is extensive and for over a decade he has developed and supported patient engagement programs for biotech companies that includes patient ambassador programs, patient/caregiver/oncology nurse leadership councils, as well as patient storytelling. In 2013, Paul co-created the Patient Advocacy Summit in conjunction with MassBio; which is an event that focuses on the intersection of patient advocacy and the biotech industry, and features keynote presentations, panel discussions, case studies, and live patient storytelling. Paul also hosts the podcast Openly Rare with Paul Kidwell which focuses on all aspects of the rare disease sector.

Paul holds a master’s degree in Public Relations from Boston University.


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This is the official #MyositisLIFE account of Myositis Support and Understanding Association (MSU),  a patient-led, patient-centered, all-volunteer 501(c)(3) nonprofit organization founded by myositis patients for myositis patients and caregivers.

MSU is Empowering the Myositis Community through education, support, advocacy, clinical trial matching, financial assistance, and access to research. We are working to improve the day to day lives of myositis patients and their caregivers. Learn more about MSU and myositis by visiting our comprehensive myositis website at Understandingmyositis.org.

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