Myositis Empower Walk - #MyositisLIFE

Our Dad was More Than His Dermatomyositis

Myositis Empower Walk

Join MSU and The Landman Family for the 2nd Annual Myositis Empower Walk, created in loving memory of Robert “Bob” Landman. This year, the Empower Walk will be in-person (with precautions) and virtual on September 19th, and with an added day of virtual participation on Sunday, September 20th!

There are many ways to get involved this year, including Myositis Empower Walk t-shirts, individual and team Empower Walk fundraising, hosting your own mini-Empower Walk, sharing your Empower Walk moments, and a lot more. Mark your calendars for September 19th and 20th to save the dates.

All donations benefit Myositis Support and Understanding and are used to further our mission, to continue our patient-centered programs and services including our financial assistance program, and to support patient-centered research. We are so grateful to the Landman Family for this event, and for their embrace of our mission.

Myositis Empower Walk Shirts

The shirt campaign is closed. Thank you for purchase your Myositis Empower Walk shirts!

Shirts this year were available in three (3) different styles and in youth and adult sizes. The shirts are made with moisture-wicking fabric and they include UPF 40+ protection rating, great for those with dermatomyositis, lupus, and other conditions where sun sensitivity is a real concern. (Remember to also wear sunblock/sunscreen, a hat, sunglasses, and seek shade when outdoors.)

Wear your shirt with pride on the day of the event, whether you are attending in-person with the Landman Family, or virtually, no matter where you are on September 19th. We want photos and videos! See the details about participating online.

2nd Annual Myositis Empower Walk, In Person and Virtual, September 19, 2020

Myositis Awareness & the Empower Walk

The Myositis Empower Walk (or Myositis EmpoweRun 5K) are great ways to build community involvement around the rare disease, myositis.

Join us on Saturday, September 19, 2020, in-person if you are in the Las Vegas area, or virtually from anywhere, starting at 10:30 AM – 12 PM Pacific Time (1:30 -3 PM Eastern Time).

Discovery Park
2011 Paseo Verde Pkwy
Henderson, Nevada 89012

We look forward to seeing you on September 19th!

Go LIVE with us on Facebook

If you are not able to attend in person, join us LIVE on Facebook for the 2nd Annual Myositis Empower Walk. You will be able to actively participate so get comfortable and join us. Facebook event details will be listed here soon. 

Participate Virtually

We can all participate in this year’s Myositis Empower Walk! But how?

The Myositis Empower Walk is Saturday, September 19th. If you are not able to attend in person, start planning now for how you can be a part of this amazing event!

Virtually attend and actively participate as we go LIVE on Facebook with The Landman’s to the Myositis Empower Walk in Henderson, NV, starting at 10:30 AM Pacific Time (1:30 PM Eastern Time) on Saturday, September 19th, or join us for a Facebook watch party of the LIVE event also with your virtual participation on Sunday, September 20th.

During the month of September, plan to publicly share your videos, photos, and experiences on social media. You can also go LIVE on your Facebook page to talk about your experiences with myositis, MSU, and to invite your family members and friends to learn more about this disease and why we need donations. Setup team fundraising, your own fundraising page, or a Facebook Fundraiser! Make it fun by updating it throughout the month or by having a fundraising contest with friends.

Right after the watch party on Sunday, September 20th, for those who are living with myositis, register and join us for our rescheduled monthly Saturday Afternoon video support session at 3 PM Eastern Time.

The opportunities for you to be a part of the Myositis Empower Walk, and to make a difference of your own, are only limited by your imagination! We are providing some ideas below that you might consider.

Host your own mini Empower Walk in your backyard, or even in the house. 

Have your camera’s powered up and ready to go and record and share, or go LIVE on social media on September 19th!

Facebook: Tag Myositis Support and Understanding Public page on Facebook and use the #EmpowerWalk hashtag.
Instagram: Tag MSU (@Myositis), tag the Empower Walk (@MyositisEmpower), and use the #EmpowerWalk hashtag.

Share videos, photos, and stories. 

Wear your Myositis Empower Walk shirt and record your Empowering moment, or a small piece of it, to share. You can dance/move in place, walk, run, swim, bike, skate, tap your fingers, whatever you are able to do, to get moving, and to share your Empower Walk moment. Upload yours at MyositisLIFE.org and/or on social media.

You can do this in a park, at home, on a city street, in a forest, a pool, or a gym, or another location. Be sure to check with the location about any guidelines or permissions required.

Create a Team Fundraiser and have a fundraising contest with your family members and friends. 

Get creative. We are giving you license to use this event to raise the visibility of and to educate about myositis, a group of rare, incurable systemic autoimmune muscle diseases for which there are no FDA-approved therapies, aside from steroids.

You can make a difference! If you have ideas or questions, please contact us.

The section above will be updated again by September 5, 2020, with additional details and ideas. Start planning!

Robert ‘Bob”and Gladys Landman

About The Landman Family

When Robert “Bob” Landman became ill he was misdiagnosed several times. When he finally got the diagnosis of dermatomyositis, it was too late for any of the medications to be effective and Bob passed away due to complications.

Since, Gladys, Jenna, Lauren, and Chad have been involved to help MSU promote awareness and raise money to continue to further our mission.

What a great legacy Bob leaves for other patients continuing to fight this rare disease.

Read “Our Dad was More Than His Dermatomyositis” to learn more about Bob Landman.

If you have lost a loved one with myositis, share their information with us to be included in MSU’s Annual “A Day of Remembrance” video event. We want to publicly remember those we have lost.

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